Feasibility study of a self-guided internet-based intervention for family caregivers of patients with cancer (OAse)

被引:2
|
作者
Grapp, Miriam [1 ,2 ]
Ell, Johanna [3 ]
Kiermeier, Senta [4 ]
Haun, Markus W. [1 ]
Kuebler, Andrea [5 ]
Friederich, Hans-Christoph [1 ]
Maatouk, Imad [1 ,4 ]
机构
[1] Univ Clin Heidelberg, Dept Gen Internal & Psychosomat Med, Neuenheimer Feld 410, D-69120 Heidelberg, Germany
[2] Univ Clin Heidelberg, Natl Ctr Tumor Dis Heidelberg, Neuenheimer Feld 460, D-69120 Heidelberg, Germany
[3] Univ Med Ctr Freiburg, Dept Psychiat & Psychotherapy, Hauptstr 6, D-79106 Freiburg, Germany
[4] Julius Maximilian Univ, Dept Internal Med 2, Sect Psychosomat Med Psychotherapy & Psychooncol, Oberdurrbacher Str 6, D-97080 Wurzburg, Germany
[5] Julius Maximilian Univ, Inst Psychol, Dept Psychol 1, Marcusstr 9-11, D-97070 Wurzburg, Germany
关键词
PSYCHOEDUCATIONAL INTERVENTION; PSYCHOMETRIC EVALUATION; INFORMAL CAREGIVERS; CARE; BURDEN; SERVICES; NEEDS; EXPERIENCES; PARTNERS; EFFICACY;
D O I
10.1038/s41598-022-21157-9
中图分类号
O [数理科学和化学]; P [天文学、地球科学]; Q [生物科学]; N [自然科学总论];
学科分类号
07 ; 0710 ; 09 ;
摘要
Despite high levels of distress, family caregivers of patients with cancer rarely seek psychosocial support and Internet-based interventions (IBIs) are a promising approach to reduce some access barriers. Therefore, we developed a self-guided IBI for family caregivers of patients with cancer (OAse), which, in addition to patients' spouses, also addresses other family members (e.g., adult children, parents). This study aimed to determine the feasibility of OAse (recruitment, dropout, adherence, participant satisfaction). Secondary outcomes were caregivers' self-efficacy, emotional state, and supportive care needs. N = 41 family caregivers participated in the study (female: 65%), mostly spouses (71%), followed by children (20%), parents (7%), and friends (2%). Recruitment (47%), retention (68%), and adherence rates (76% completed at least 4 of 6 lessons) support the feasibility of OAse. Overall, the results showed a high degree of overall participant satisfaction (96%). There were no significant pre-post differences in secondary outcome criteria, but a trend toward improvement in managing difficult interactions/emotions (p = .06) and depression/anxiety (p = .06). Although the efficacy of the intervention remains to be investigated, our results suggest that OAse can be well implemented in caregivers' daily lives and has the potential to improve family caregivers' coping strategies.
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页数:11
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