The Suffering Pictogram: Measuring Suffering in Palliative Care

被引：18

作者：

Beng, Tan Seng ^{[1
]}

Ann, Yee Hway ^{[2
]}

Guan, Ng Chong ^{[2
]}

Chin, Loh Ee ^{[1
]}

Loong, Lam Chee ^{[1
]}

Ying, Ng Tze ^{[1
]}

Teck, Teo Yong ^{[1
]}

Li, Hong Li ^{[1
]}

Meng, Christopher Boey Chiong ^{[3
]}

机构：

[1] Univ Malaya, Dept Med, Fac Med, Med Ctr, Kuala Lumpur 59100, Malaysia

[2] Univ Malaya, Dept Psychol Med, Fac Med, Med Ctr, Kuala Lumpur, Malaysia

[3] Univ Malaya, Deans Off, Fac Med, Med Ctr, Kuala Lumpur, Malaysia

来源：

JOURNAL OF PALLIATIVE MEDICINE | 2017年 / 20卷 / 08期

关键词：

psychosocial; quality of life; suffering; Suffering Pictogram; suffering assessment; END-OF-LIFE; CANCER-PATIENTS; RESPONSE RATE; QUESTIONNAIRE; LENGTH;

D O I：

10.1089/jpm.2016.0448

中图分类号：

R19 [保健组织与事业（卫生事业管理）];

学科分类号：

摘要：

Background: Measuring suffering objectively presents a challenge because suffering is a unique and subjective experience. However, objective tools are of profound importance in the detection and management of suffering in clinical practice for optimal patient care. Objective: The objective of the study is to assess the psychometric properties of the Suffering Pictogram, a new suffering assessment instrument on a population of palliative care patients. Design and Setting: This is a validation study conducted at University of Malaya Medical Centre, Kuala Lumpur, Malaysia. Ninety one palliative care patients were recruited. Patients were interviewed with the Suffering Pictogram and FACIT-Sp. Results: The median completion time for the Suffering Pictogram was five minutes. The Suffering Pictogram showed good internal consistency, with a Cronbach's alpha of 0.836. The total scores of the Suffering Pictogram correlated strongly and negatively with FACIT-Sp total score (Spearman's Rho=-0.625, p<0.001). Conclusion: The Suffering Pictogram is a brief, reliable, and valid instrument to measure suffering in palliative care. The instrument can be used as a screening tool to detect suffering directly.

引用

页码：869 / 874

页数：6

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