Quality of Life in Hidradenitis Suppurativa: Validation of the HSQoL-24

被引：4

作者：

Marron, Servando E. ^{[1
,2
,3
]}

Gomez-Barrera, Manuel ^{[4
]}

Tomas Aragones, Lucia ^{[2
,3
,5
]}

Goni-Navarro, Ana ^{[2
,6
]}

Vilarrasa-Rull, Eva ^{[7
]}

Maria Diaz-Diaz, Rosa ^{[3
,8
]}

Garcia-Latasa De Aranibar, Francisco Javier ^{[2
,9
]}

Campos-Rodenas, Ricardo ^{[6
]}

Fuentelsaz-Del Barrio, Victoria ^{[2
,9
,10
,11
]}

Gilaberte-Calzada, Yolanda ^{[1
]}

Gracia-Cazana, Tamara ^{[2
,10
]}

Maria Morales-Callaghan, Anna ^{[1
,2
]}

Ros-Abarca, Sandra ^{[7
]}

Blanca Madrid-Alvarez, Maria ^{[3
,11
]}

Puig, Lluis ^{[7
]}

机构：

[1] Univ Hosp Miguel Servet, Dermatol Dept, Zaragoza, Spain

[2] Aragon Psychodermatol Res Grp GAI PD, Zaragoza, Spain

[3] Spanish Acad Dermatol & Venereol AEDV, Spanish Res Grp Dermatol & Psychiat GEDEPSI, Madrid, Spain

[4] Univ San Jorge, Pharmacoecon & Outcomes Res Iberia, Zaragoza, Spain

[5] Univ Zaragoza, Dept Psychol, Zaragoza, Spain

[6] Univ Hosp Lozano Blesa, Psychiat Dept, Zaragoza, Spain

[7] Univ Autonoma Barcelona, Santa Creu & St Pau Hosp, Dermatol Dept, Barcelona, Spain

[8] Univ Hosp Infanta Sofia, Dermatol Dept, Madrid, Spain

[9] Royo Villanova Hosp, Dermatol Dept, Zaragoza, Spain

[10] Barbastro Hosp, Dermatol Dept, Barbastro, Spain

[11] Univ Hosp Dr Negrin, Dermatol Dept, Las Palmas Gran Canaria, Spain

来源：

ACTA DERMATO-VENEREOLOGICA | 2021年 / 101卷

关键词：

hidradenitis suppurativa; quality of life; patient reported outcome measure; psychometrics; validation; PATIENT-REPORTED OUTCOMES; TRANSLATION; UPDATE;

D O I：

10.2340/00015555-3905

中图分类号：

R75 [皮肤病学与性病学];

学科分类号：

100206 ;

摘要：

To date, there are no disease-specific instruments in Spanish to assess quality of life of patients with hidradenitis suppurativa. A multicentre study was previously carried out in Spain between 2016 and 2017 to develop the Hidradenitis Suppurativa Quality of Life-24 (HSQoL-24), a disease-specific questionnaire to assess quality of life in patients with hidradenitis suppurativa. The objectiv es of this study are to revalidate the HSQoL-24 in Spanish with a larger sample of patients, and to present the English version. In this multi centre study in Spain, patients with hidradenitis suppurativa completed the HSQoL-24, the Dermatology Life Quality Index and the Skindex-29. The Hurley staging system was used to assess the severity of the disease. Validation of the questionnaire was carried out in 130 patients, of whom 75 (57.7%) were women. This study demonstrates adequate values of reliability and validity of the HSQoL-24, confirming the previous test re-test validation and making this questionnaire one of wide clinical validity in terms of results perceived by patients.

引用

页数：5

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