Acute bleeding episodes impact quality of life (QoL) in patients/families with congenital hemophilia with inhibitors (CHwI): analysis of bleed vs. non-bleed days from the dosing observational study in hemophilia (DOSE)

被引：0

作者：

Neufeld, E. ^{[1
]}

Recht, M. ^{[2
]}

Sabio, H. ^{[3
]}

Cooper, D. ^{[4
]}

Wilke, C. ^{[5
]}

Gut, R. ^{[4
]}

机构：

[1] Childrens Hosp Boston, Boston, MA USA

[2] Oregon Hlth & Sci Univ, Portland, OR USA

[3] Wake Forest Univ, Baptist Med Ctr, Winston Salem, NC 27109 USA

[4] Novo Nordisk Inc, Princeton, NJ USA

[5] Univ Illinois, Chicago, IL USA

来源：

HAEMOPHILIA | 2010年 / 16卷

关键词：

D O I：

暂无

中图分类号：

R5 [内科学];

学科分类号：

1002 ; 100201 ;

摘要：

引用

页码：76 / 76

页数：1

共 11 条

[1] EFFECT OF ACUTE BLEEDING EPISODES ON QUALITY OF LIFE (QOL) IN PATIENTS WITH CONGENITAL HEMOPHILIA WITH INHIBITORS (CHWI) AND THEIR FAMILIES: OBSERVATIONS OF BLEED VS. NON-BLEED DAY QOL FROM THE DOSING OBSERVATIONAL STUDY IN HEMOPHILIA (DOSE) AND IMPLICATIONS FOR ASSESSMENT AND PREDICTION
Neufeld, E. J.
Recht, M.
Sabio, H.
Cooper, D. L.
Wilke, C. T.
Pickard, A. S.
Gut, R.
VALUE IN HEALTH, 2010, 13 (03) : A214 - A214
[2] IMPACT OF ACUTE BLEEDING AND ADMINISTRATION OF BYPASSING AGENTS (BPA) ON DAILY ACTIVITIES OF PATIENTS WITH CONGENITAL HEMOPHILIA WITH INHIBITORS (CHWI) AND THEIR CAREGIVERS AND FAMILIES: OBSERVATIONS FROM THE DOSING OBSERVATIONAL STUDY IN HEMOPHILIA (DOSE)
Recht, M.
Neufeld, E. J.
Sharma, V
Cooper, D. L.
Wilke, C. T.
Pickard, A. S.
Gut, R.
VALUE IN HEALTH, 2010, 13 (03) : A214 - A214
[3] Impact of Acute Bleeding on Daily Activities of Patients with Congenital Hemophilia with Inhibitors and Their Caregivers and Families: Observations from the Dosing Observational Study in Hemophilia (DOSE)
Recht, Michael
Neufeld, Ellis J.
Sharma, Vivek R.
Salem, Caitlyn T.
Pickard, A. Simon
Gut, Robert Z.
Cooper, David L.
VALUE IN HEALTH, 2014, 17 (06) : 744 - 748
[4] Effect of Acute Bleeding on Daily Quality of Life Assessments in Patients with Congenital Hemophilia with Inhibitors and Their Families: Observations from the Dosing Observational Study in Hemophilia
Neufeld, Ellis J.
Recht, Michael
Sabio, Hernan
Saxena, Kapil
Solem, Caitlyn T.
Pickard, A. Simon
Gut, Robert Z.
Cooper, David L.
VALUE IN HEALTH, 2012, 15 (06) : 916 - 925
[5] Capturing daily home treatment and quality of life assessments in Congenital Hemophilia with Inhibitors (CHwI): design, disposition and implications of the Dosing Observational Study in hemophilia (DOSE)
Young, G.
Cooper, D. L.
Hoffman, K.
Kabawat, J.
Wilke, C. T.
HAEMOPHILIA, 2010, 16 : 146 - 146
[6] Impact of acute bleeding episodes and bypassing agent (BPA) administration on patient/caregiver/family daily activities in congenital hemophilia with inhibitors: analysis of the dosing observational study in hemophilia (DOSE)
Recht, M.
Neufeld, E.
Sharma, V.
Cooper, D.
Wilke, C.
Gut, R.
HAEMOPHILIA, 2010, 16 : 76 - 77
[7] Patient/caregiver-reported recombinant factor VIIa (rFVIIa) dosing for acute bleeds in patients with congenital hemophilia with inhibitors (CHwI): results from the dosing observational study in hemophilia (DOSE)
Young, G.
Walsh, C.
Gruppo, R.
Cooper, D.
HAEMOPHILIA, 2010, 16 : 80 - 80
[8] A comparison of prescribed and actual recombinant factor VIIa (rFVIIa) dosing in pediatric versus adult patients with congenital hemophilia with inhibitors (CHwI): analysis of the dosing observational study in hemophilia (DOSE)
Gruppo, R.
Kessler, C.
Neufeld, E.
Shapiro, A.
Cooper, D.
Carr, M., Jr.
HAEMOPHILIA, 2010, 16 : 73 - 73
[9] A COMPARISON OF DOSING OF RECOMBINANT FACTOR VIIa (rFVIIa) IN PEDIATRIC VERSUS ADULT PATIENTS WITH CONGENITAL HEMOPHILIA WITH INHIBITORS (CHwI): PRESCRIPTION AND ACTUAL DATA FROM THE DOSING OBSERVATIONAL STUDY IN HEMOPHILIA (DOSE)
Gruppo, Ralph
Kessler, Craig
Neufeld, Ellis
Cooper, David
Carr, Marcus
PEDIATRIC BLOOD & CANCER, 2010, 54 (06) : 810 - 810
[10] Assessment of individual dose utilization vs. physician prescribing recommendations for recombinant activated factor VII (rFVIIa) in paediatric and adult patients with congenital haemophilia and alloantibody inhibitors (CHwI): the Dosing Observational Study in Hemophilia (DOSE)
Gruppo, R. A.
Kessler, C. M.
Neufeld, E. J.
Cooper, D. L.
HAEMOPHILIA, 2013, 19 (04) : 524 - 532

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