Long-term sexual health outcomes in men with classic bladder exstrophy

Objectives To identify the long-term sexual health outcomes and relationships in men born with classic bladder exstrophy (CBE). Materials and Methods A prospectively maintained institutional database comprising 1248 patients with exstrophy-epispadias was used. Men aged >= 18 years with CBE were included in the study. A 42-question survey was designed using a combination of demographic information and previously validated questionnaires. Results A total of 215 men met the inclusion criteria, of whom 113 (53%) completed the questionnaire. The mean age of the respondents was 32 years. Ninety-six (85%) of the respondents had been sexually active in their lifetime, and 66 of these (58%) were moderately to very satisfied with their sex life. The average Sexual Health Inventory for Men score was 19.8. All aspects of assessment using the Penile Perception Score questionnaire were on average between 'very dissatisfied' and 'satisfied'. Thirty-two respondents (28%) had attempted to conceive with their partner. Twenty-three (20%) were successful in conceiving, while 31 (27%) reported a confirmed fertility problem. A total of 31 respondents (27%) reported undergoing a semen analysis or post-ejaculatory urine analysis. Of these, only four respondents reported azoospermia. Conclusion Patients with CBE have many of the same sexual and relationship successes and concerns as the general population. This is invaluable information to give to both the parents of boys with CBE, and to the boys themselves as they transition to adulthood.