Talking about sexuality with your own child. The perspective of the parents of children born with arm

被引:1
|
作者
Eleuteri, S. [1 ]
Aminoff, D. [1 ]
Midrio, P. [2 ]
Leva, E. [3 ,4 ]
Morandi, A. [3 ]
Spinoni, M. [5 ]
Grano, C. [1 ,5 ]
机构
[1] Italian Patients & Parents Assoc Anorectal Malfor, Rome, Italy
[2] Ca Foncello Hosp, Pediat Surg Unit, Treviso, Italy
[3] Fdn IRCCS Ca Granda Osped Maggiore Policlin, Dept Pediat Surg, Milan, Italy
[4] Univ Milan, Dept Clin Sci & Community Hlth, Milan, Italy
[5] Sapienza Univ Rome, Dept Psychol, Rome, Italy
关键词
ARM; Sexuality; Rare disease; Quality of life; Anorectal malformations; Patient and parent associations; QUALITY-OF-LIFE; ANORECTAL-MALFORMATIONS; HEALTH; CARE; COMMUNICATION; SATISFACTION; PEOPLE;
D O I
10.1007/s00383-022-05217-9
中图分类号
R72 [儿科学];
学科分类号
100202 ;
摘要
Purpose Evaluate whether parents have ever discussed sexuality with their children with anorectal malformations (ARM), which sexuality issues they think should be addressed and who, in their opinion, should address these issues. Methods Parents from the Italian Parents' and Patients' Association for Anorectal Malformation participated in meetings organized by the Association together with local Pediatric Surgical Units and were asked to fill in a questionnaire. Results 103 parents participated. Overall, 66% of parents had never talked about sex with their children. Children's age was marginally correlated with occasions to talk about sexuality (r = .202, p = 0.53) indicating that the older were the children, the more the parents talked about sexuality. The majority of parents reported that their children should have the possibility to talk about sex with them (72%), psychologists (57%), gynecologists/andrologists (47%), pediatric surgeons (33.5%), surgeons specialized in ARM (39.8%), friends (28%), nurses (24.7%) and teachers (20.4%), respectively. The most important topic they thought their children should address was handling serene sexuality, although the most common topic effectively discussed with them was the conception. Conclusion Psychologists, gynecologists/andrologists, and pediatric surgeons are seen as key resources for talking about sexuality. A great number of parents express the wish that their children had more opportunities to discuss sexual topics with pediatric surgeons.
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页码:1665 / 1670
页数:6
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