Hearing the voices of children with chronic illness

被引:76
|
作者
Sartain, SA
Clarke, CL
Heyman, R
机构
[1] Northumbria Univ, Fac Hlth Social Work & Educ, Newcastle Upon Tyne NE1 8ST, Tyne & Wear, England
[2] Arrowe Pk Hosp, Wirral Serv Child Hlth, Wirral, Merseyside, England
关键词
active participants; children; chronic illness; competent interpreters; health care; perceived passivity;
D O I
10.1046/j.1365-2648.2000.01556.x
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
This qualitative study has aimed to explore children's, parents' and health professionals' experience of childhood chronic illness. Seven families and their professional carers participated in semistrucured interviews. The children's interviews were augmented with a 'drawing' technique. A grounded theory approach facilitated data collection and analysis. This paper debates the perceived passivity of the voice of children in health care and research and illustrates data collection methods that seek to give children and other disadvantaged groups a voice. The children who participated in this study are described as competent interpreters of their world.
引用
收藏
页码:913 / 921
页数:9
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