Transforming challenges into opportunities: conducting health preference research during the COVID-19 pandemic and beyond

被引:2
|
作者
Kaur, Manraj N. [1 ]
Skolasky, Richard L. [2 ,3 ]
Powell, Philip A. [4 ]
Xie, Feng [5 ,6 ]
Huang, I-Chan [7 ,8 ]
Kuspinar, Ayse [9 ]
O'Dwyer, John L. [10 ]
Cizik, Amy M. [11 ]
Rowen, Donna [4 ]
机构
[1] Brigham & Womens Hosp, Dept Surg, Patient Reported Outcomes Value & Experience PROV, 75 Francis St, Boston, MA 02115 USA
[2] Johns Hopkins Univ, Sch Med, Dept Orthoped Surg, Baltimore, MD USA
[3] Johns Hopkins Univ, Sch Med, Dept Phys Med & Rehabil, Baltimore, MD USA
[4] Univ Sheffield, Sch Hlth & Related Res, Sheffield, S Yorkshire, England
[5] McMaster Univ, Dept Hlth Res Methods Evidence & Impact, Hamilton, ON, Canada
[6] McMaster Univ, Ctr Hlth Econ & Policy Anal, Hamilton, ON, Canada
[7] St Jude Childrens Res Hosp, Dept Epidemiol & Canc Control, 332 N Lauderdale St, Memphis, TN 38105 USA
[8] St Jude Childrens Res Hosp, Comprehens Canc Ctr, 332 N Lauderdale St, Memphis, TN 38105 USA
[9] McMaster Univ, Sch Rehabil Sci, Hamilton, ON, Canada
[10] Univ Leeds, Acad Unit Hlth Econ, Leeds Inst Hlth Sci, Leeds, W Yorkshire, England
[11] Univ Utah, Dept Orthoped, Salt Lake City, UT USA
基金
加拿大健康研究院;
关键词
COVID-19; Pandemic; Health preference research; Preference elicitation; Vulnerable people; Data collection; Online administration; Challenges; Face-to-face administration; VALUATION; RECOMMENDATIONS; UTILITY; ONLINE; MODE;
D O I
10.1007/s11136-021-03012-y
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
The disruptions to health research during the COVID-19 pandemic are being recognized globally, and there is a growing need for understanding the pandemic's impact on the health and health preferences of patients, caregivers, and the general public. Ongoing and planned health preference research (HPR) has been affected due to problems associated with recruitment, data collection, and data interpretation. While there are no "one size fits all" solutions, this commentary summarizes the key challenges in HPR within the context of the pandemic and offers pragmatic solutions and directions for future research. We recommend recruitment of a diverse, typically under-represented population in HPR using online, quota-based crowdsourcing platforms, and community partnerships. We foresee emerging evidence on remote, and telephone-based HPR modes of administration, with further studies on the shifts in preferences related to health and healthcare services as a result of the pandemic. We believe that the recalibration of HPR, due to what one would hope is an impermanent change, will permanently change how we conduct HPR in the future.
引用
收藏
页码:1191 / 1198
页数:8
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