Knowledge translation resources to support the use of quality of life assessment tools for the care of older adults living at home and their family caregivers

被引:2
|
作者
Schick-Makaroff, Kara [1 ]
Sawatzky, Richard [2 ,3 ,4 ]
Cuthbertson, Lena [5 ]
Ohlen, Joakim [6 ,7 ,8 ]
Beemer, Autumn [9 ]
Duquette, Dominique [9 ]
Karimi-Dehkordi, Mehri [10 ]
Stajduhar, Kelli, I [11 ]
Suryaprakash, Nitya [12 ]
Terblanche, Landa [2 ]
Wolff, Angela C. [2 ]
Cohen, S. Robin [13 ,14 ,15 ]
机构
[1] Univ Alberta, Fac Nursing, 4-116 Edmonton Clin Hlth Acad,11405-87 Ave, Edmonton, AB T6G 1C9, Canada
[2] Trinity Western Univ, Sch Nursing, 22500 Univ Dr, Langley, BC V2Y 1Y1, Canada
[3] St Pauls Hosp, Ctr Hlth Evaluat & Outcome Sci, 588-1081 Burrard St, Vancouver, BC V6Z 1Y6, Canada
[4] Univ Gothenburg, Sahlgrenska Acad, Medicinaregatan 3,Box 400, S-40530 Gothenburg, Sweden
[5] Minist Hlth British Columbia, Off Patient Centred Measurement, 1190 Hornby St,341F, Vancouver, BC V6Z 2K5, Canada
[6] Univ Gothenburg, Sahlgrenska Acad, Inst Hlth & Care Sci, Box 400, S-40530 Gothenburg, Sweden
[7] Univ Gothenburg, Sahlgrenska Acad, Ctr Person Ctr Care GPCC, Box 400, S-40530 Gothenburg, Sweden
[8] Sahlgrens Univ Hosp, Palliat Ctr, Gothenburg, Sweden
[9] Univ Alberta, Edmonton Clin Hlth Acad, Fac Nursing, Level 3,11405-87 Ave, Edmonton, AB T6G 1C9, Canada
[10] Univ Alberta, Dept Med, Div Geriatr Med, 1-198 Clin Sci Bldg,11350-83Ave, Edmonton, AB T6G 2P4, Canada
[11] Univ Victoria, Sch Nursing, Inst Aging & Lifelong Hlth, STN CSC, POB 1700, Victoria, BC V8W 2Y2, Canada
[12] Univ British Columbia, Ctr Clin Epidemiol & Evaluat, 7th Floor,828 West 10th Ave,Res Pavil, Vancouver, BC V5Z 1M9, Canada
[13] McGill Univ, Dept Oncol, Montreal, PQ H4A 3T2, Canada
[14] McGill Univ, Dept Med, Montreal, PQ H4A 3T2, Canada
[15] Jewish Gen Hosp, Lady Davis Res Inst, Montreal, PQ H3T 1E2, Canada
关键词
Quality of life assessment tools; Patient-reported outcome measures; Older adults; Family caregivers; Knowledge translation; PATIENT-REPORTED OUTCOMES; CLINICAL-PRACTICE; HEALTH; INTERVIEWS; CHALLENGES; CHECKLIST; FRAMEWORK; ROUTINE; PEOPLE; SYSTEM;
D O I
10.1007/s11136-021-03011-z
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Purpose To support the use of quality of life (QOL) assessment tools for older adults, we developed knowledge translation (KT) resources tailored for four audiences: (1) older adults and their family caregivers (micro), (2) healthcare providers (micro), (3) healthcare managers and leaders (meso), and (4) government leaders and decision-makers (macro). Our objectives were to (1) describe knowledge gaps and resources and (2) develop corresponding tailored KT resources to support use of QOL assessment tools by each of the micro-, meso-, and macro-audiences. Methods Data were collected in two phases through semi-structured interviews/focus groups with the four audiences in Canada. Data were analyzed using qualitative description analysis. KT resources were iteratively refined through formative evaluation. Results Older adults and family caregivers (N = 12) wanted basic knowledge about what "QOL assessment" meant and how it could improve their care. Healthcare providers (N = 13) needed practical solutions on how to integrate QOL assessment tools in their practice. Healthcare managers and leaders (N = 14) desired information about using patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs) in healthcare programs and quality improvement. Government leaders and decision-makers (N = 11) needed to know how to access, use, and interpret PROM and PREM information for decision-making purposes. Based on these insights and evidence-based sources, we developed KT resources to introduce QOL assessment through 8 infographic brochures, 1 whiteboard animation, 1 live-action video, and a webpage. Conclusion Our study affirms the need to tailor KT resources on QOL assessment for different audiences. Our KT resources are available: www.healthyqol.com/older-adults.
引用
收藏
页码:1727 / 1747
页数:21
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