Paid carers' understanding and experiences of meaningful involvement in bereavement for people with intellectual disability when a significant other is dying

被引:0
|
作者
Hedayioglu, Julie [1 ,2 ]
Marsden, Sue [3 ]
Sackree, Amy [4 ]
Oliver, David [5 ]
机构
[1] Kent Community NHS Fdn Trust, Clin Audit & Res, 110-120 Trinity House,Eureka Business Pk, Ashford, Kent, England
[2] Univ Kent, Ctr Hlth Serv Studies, Canterbury, Kent, England
[3] Kent Community NHS Fdn Trust, Specialist Community Matron, West Malling, England
[4] Canterbury Christ Church, Canterbury, Kent, England
[5] Univ Kent, Tizard Ctr, Canterbury, Kent, England
关键词
bereavement; death and dying; intellectual disabilities; meaningful involvement; staff support; training; STAFF; ADULTS; DEATH; SUPPORT; SERVICES;
D O I
10.1111/jar.12929
中图分类号
G44 [教育心理学];
学科分类号
0402 ; 040202 ;
摘要
Background Wider communication about death and dying for those with intellectual disabilities has been highlighted as being of key importance. Objective To gain the perspective of paid carers based in residential homes about meaningfully supporting individuals with intellectual disabilities in the bereavement process. Methods Semi-structured interviews were conducted with paid carers working across two residential homes. Results Four themes were identified: (a) challenges in having conversations about death and dying; (b) meaningful involvement of residents in the bereavement process; (c) the relationship between paid carers and residents (including the impact of a resident's death on paid carers); and (d) the support needs of paid carers. Conclusions The recommendations from previous research of meaningfully involving people with intellectual disabilities in the bereavement process have not filtered fully into practice. Paid carers still highlight the need for specialist support and advice to help them discuss and increase involvement in death and dying.
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页码:143 / 149
页数:7
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