Building on relationships of trust in biobank research

被引:65
|
作者
Hansson, MG
机构
[1] Karolinska Inst, Ctr Bioeth, SE-75185 Uppsala, Sweden
[2] Uppsala Univ, SE-75185 Uppsala, Sweden
关键词
D O I
10.1136/jme.2004.009456
中图分类号
B82 [伦理学(道德学)];
学科分类号
摘要
Trust among current and future patients is essential for the success of biobank research. The submission of an informed consent is an act of trust by a patient or a research subject, but a strict application of the rule of informed consent may not be sensitive to the multiplicity of patient interests at stake, and could thus be detrimental to trust. According to a recently proposed law on " genetic integrity'' in Sweden, third parties will be prohibited from requesting or seeking genetic information about an individual. Cumbersome restrictions on research may be lifted, thus creating a more favourable climate for medical research.
引用
收藏
页码:415 / 418
页数:4
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