Hairdex - A tool for evaluation of disease-specific life quality in hair patients

被引:0
|
作者
Fischer, TW
Schmidt, S
Strauss, B
Elsner, P
机构
[1] Univ Jena Klinikum, Klin Dermatol & Allergol, D-07740 Jena, Germany
[2] Univ Jena, Inst Med Psychol, D-6900 Jena, Germany
来源
HAUTARZT | 2001年 / 52卷 / 03期
关键词
Hairdex; life quality; hair diseases; patient's acceptance;
D O I
10.1007/s001050051293
中图分类号
R75 [皮肤病学与性病学];
学科分类号
100206 ;
摘要
Because of a strong reduction of life quality in patients with hair loss, a special questionnaire was developed following the general Skindex questionnaire for dermatoses. The Hairdex was evaluated in 75 female hair patients. The aim of the study was to prove the questionnaire's statistical values, reliability, validity, general acceptance and accuracy. The clinical manifestation of hair loss was categorized as "not visible", slightly visible" and "obviously visible". The hair loss lead to great differences in the life quality of both the patients with obvious hair loss and in patients with non-visible hair loss,especially in the categories "emotions", "self-confidence" and "stigmatization". The convergent and discriminant validity of the questionnaire was satisfactory. The acceptance of the questionnaire was very good with 90%. The hairdex-questionnaire represents a reliable and patient-oriented instrument for evaluation of life quality in hair diseases. The reliability of the questionnaire concerning longitudinal therapeutic effects will need to be investigated in further studies.
引用
收藏
页码:219 / 227
页数:9
相关论文
共 50 条
  • [1] Hairdex - A tool for evaluation of disease-specific life quality in hair patients [Hairdex - Ein instrument zur untersuchung der krankheitsbezogenen lebensqualität bei patienten mit haarerkrankungen]
    Fischer T.W.
    Schmidt S.
    Strauss B.
    Elsner P.
    [J]. Der Hautarzt, 2001, 52 (3): : 219 - 227
  • [2] Disease-specific quality of life in patients with lupus nephritis
    Jolly, M.
    Toloza, S.
    Goker, B.
    Clarke, A. E.
    Navarra, S. V.
    Wallace, D.
    Weisman, M.
    Mok, C. C.
    [J]. LUPUS, 2018, 27 (02) : 257 - 264
  • [3] Disease-specific quality of life in patients with diabetic neuropathy
    Alghamdi, Mushabab
    Owolabi, Lukman F.
    Adamu, Bappa
    Taura, Magaji G.
    Jibo, Abubakar
    Almansour, Mohammed
    Alaklabi, Saeed N.
    Alghamdi, Mohammed A.
    Imam, Isa A.
    Abdelrazak, Reda
    Rafaat, Ahmad
    Aliyu, Muktar H.
    [J]. SAUDI MEDICAL JOURNAL, 2022, 43 (04) : 408 - 417
  • [4] Quality of life in patients with arterial and venous leg ulcers introduction of a disease-specific measurement tool
    Debus, E. S.
    Spech, E.
    Larena-Avellaneda, A.
    Faller, H. H.
    [J]. GEFASSCHIRURGIE, 2005, 10 (02): : 99 - 108
  • [5] The 'PRESTON Profile' - The first disease-specific tool for assessing quality of life in patients with malignant glioma
    Lyons, GJ
    [J]. DISABILITY AND REHABILITATION, 1996, 18 (09) : 460 - 468
  • [6] Disease-Specific Quality of Life in Young Patients With Tourette Syndrome
    Cavanna, Andrea E.
    Luoni, Chiara
    Selvini, Claudia
    Blangiardo, Rosanna
    Eddy, Clare M.
    Silvestri, Paola R.
    Cali, Paola V.
    Gagliardi, Emanuela
    Balottin, Umberto
    Cardona, Francesco
    Rizzo, Renata
    Termine, Cristiano
    [J]. PEDIATRIC NEUROLOGY, 2013, 48 (02) : 111 - 114
  • [7] Development of a disease-specific quality of life questionnaire for patients with epilepsy
    Rogiers, GR
    Majoie, MH
    Ament, AJ
    Evers, SM
    [J]. INTERNATIONAL JOURNAL OF NEUROPSYCHOPHARMACOLOGY, 2004, 7 : S283 - S283
  • [8] Research on disease-specific quality of life in patients with anal fistula
    Liu, Qianqian
    Zhan, Mengjun
    Hong, Zihan
    Zhang, Lu
    [J]. JOURNAL OF ADVANCED NURSING, 2024, 80 : 15 - 15
  • [9] Kidney Disease-Specific Quality of Life among Patients on Hemodialysis
    Al Salmi, Issa
    Kamble, Pramod
    Lazarus, Eilean Rathinasamy
    D'Souza, Melba Sheila
    Al Maimani, Yaqoob
    Hannawi, Suad
    [J]. INTERNATIONAL JOURNAL OF NEPHROLOGY, 2021, 2021
  • [10] Evaluation of disease-specific health-related quality of life in patients with pulmonary arterial hypertension
    Zlupko, Michael
    Harhay, Michael O.
    Gallop, Robert
    Shin, Jennifer
    Archer-Chicko, Chris
    Patel, Rajesh
    Palevsky, Harold I.
    Taichman, Darren B.
    [J]. RESPIRATORY MEDICINE, 2008, 102 (10) : 1431 - 1438