European Crohn's and Colitis Organisation Topical Review on Transitional Care in Inflammatory Bowel Disease

被引:69
|
作者
van Rheenen, Patrick F. [1 ]
Aloi, Marina [2 ]
Biron, Irit Avni [3 ]
Carlsen, Katrine [4 ]
Cooney, Rachel [5 ]
Cucchiara, Salvatore [2 ]
Cullen, Garret [6 ]
Escher, Johanna C. [7 ]
Kierkus, Jaroslaw [8 ]
Lindsay, James O. [9 ]
Roma, Eleftheria [10 ]
Russell, Richard K. [11 ]
Sieczkowska-Golub, Joanna [8 ]
Harbord, Marcus [12 ,13 ]
机构
[1] Univ Groningen, Univ Med Ctr Groningen, Dept Paediat Gastroenterol, Hanzepl 1, NL-9713 GZ Groningen, Netherlands
[2] Sapienza Univ Rome, Univ Hosp Umberto 1, Paediat Gastroenterol & Liver Unit, Rome, Italy
[3] Beilinson Med Ctr, Rabin Med Ctr, Dept Gastroenterol, Petah Tiqwa, Israel
[4] Hvidovre Univ Hosp, Dept Paediat, Hvidovre, Denmark
[5] Queen Elizabeth Hosp, Dept Gastroenterol, Birmingham, W Midlands, England
[6] St Vincents Univ Hosp, Ctr Colorectal Dis, Dept Gastroenterol, Dublin, Ireland
[7] Erasmus Univ, Sophia Childrens Hosp, Dept Paediat Gastroenterol, Med Ctr, Rotterdam, Netherlands
[8] Childrens Mem Hlth Inst, Dept Gastroenterol Hepatol Feeding Disorders & Pa, Warsaw, Poland
[9] Barts Hlth NHS Trust, Royal London Hosp, Dept Gastroenterol, London, England
[10] Univ Athens, Dept Paediat 1, Gastroenterol Unit, Athens, Greece
[11] Royal Hosp Children, Dept Paediat Gastroenterol, Glasgow, Lanark, Scotland
[12] Imperial Coll, London, England
[13] Chelsea & Westminster Hosp, London, England
来源
JOURNAL OF CROHNS & COLITIS | 2017年 / 11卷 / 09期
关键词
Transition to adult care; inflammatory bowel diseases; ulcerative colitis; Crohn's disease; ADULT HEALTH-CARE; YOUNG-ADULTS; IMPROVE TRANSITION; READINESS SKILLS; SELF-MANAGEMENT; ADOLESCENTS; IBD; PERSPECTIVES; PATIENT; VALIDATION;
D O I
10.1093/ecco-jcc/jjx010
中图分类号
R57 [消化系及腹部疾病];
学科分类号
摘要
Background: This European Crohn's and Colitis Organisation [ECCO] topical review focuses on the transition of adolescents with inflammatory bowel disease [IBD] from child-centred to adult-oriented care. The aim was to provide evidence-supported, expert consensus for health professionals taking part in the transition. Methods: An online survey determined the areas of importance for health professionals involved in the transition of adolescents with IBD. Thereafter an expert panel of nine paediatric and five adult gastroenterologists was formed to identify the critical elements of the transition programme, and to prepare core messages defined as 'current practice points'. There is limited literature about transition, therefore this review is mainly based on expert opinion and consensus, rather than on specific evidence. Results: A total of 21 practice points were generated before the first [online] voting round. Practice points that reached >80% agreement were accepted, while those that did not reach 80% agreement were refined during a consensus meeting and subjected to voting. Ultimately, 14 practice points were retained by this review. Conclusion: We present a consensus-based framework for transitional care in IBD that provides a guidance for clinical practice.
引用
收藏
页码:1032 / 1038
页数:7
相关论文
共 50 条
  • [1] European Crohn's and Colitis Organisation Topical Review on Treatment Withdrawal ['Exit Strategies'] in Inflammatory Bowel Disease
    Doherty, Glen
    Katsanos, Konstantinos H.
    Burisch, Johan
    Allez, Matthieu
    Papamichael, Konstantinos
    Stallmach, Andreas
    Mao, Ren
    Berset, Ingrid Prytz
    Gisbert, Javier P.
    Sebastian, Shaji
    Kierkus, Jaroslaw
    Lopetuso, Loris
    Szymanska, Edyta
    Louis, Edouard
    [J]. JOURNAL OF CROHNS & COLITIS, 2018, 12 (01): : 17 - 31
  • [2] European Crohn's and Colitis Organisation Topical Review on Complementary Medicine and Psychotherapy in Inflammatory Bowel Disease (Publication with Expression of Concern)
    Torres, Joana
    Ellul, Pierre
    Langhorst, Jost
    Mikocka-Walus, Antonina
    Barreiro-de Acosta, Manuel
    Basnayake, Chamara
    Ding, Nik John Sheng
    Gilardi, Daniela
    Katsanos, Konstantinos
    Moser, Gabriele
    Opheim, Randi
    Palmela, Carolina
    Pellino, Gianluca
    Van der Marel, Sander
    Vavricka, Stephan R.
    [J]. JOURNAL OF CROHNS & COLITIS, 2019, 13 (06): : 673 - +
  • [3] Clinicians' adherence to European Crohn's and Colitis Organisation guidelines in the clinical care of adults with inflammatory bowel disease
    Jackson, B.
    Con, D.
    De Cruz, P.
    [J]. JOURNAL OF CROHNS & COLITIS, 2016, 10 : S348 - S349
  • [4] European Crohn's and Colitis Organisation Topical Review on IBD in the Elderly
    Sturm, Andreas
    Maaser, Christian
    Mendall, Michael
    Karagiannis, Dimitrios
    Karatzas, Pantelis
    Ipenburg, Nienke
    Sebastian, Shaji
    Rizzello, Fernando
    Limdi, Jimmy
    Katsanos, Konstantinos
    Schmidt, Carsten
    Jeuring, Steven
    Colombo, Francesco
    Gionchetti, Paolo
    [J]. JOURNAL OF CROHNS & COLITIS, 2017, 11 (03): : 263 - 273
  • [5] European Crohn's and Colitis Organisation Topical Review on Prediction, Diagnosis and Management of Fibrostenosing Crohn's Disease
    Rieder, Florian
    Latella, Giovanni
    Magro, Fernando
    Yuksel, Elif S.
    Higgins, Peter D. R.
    Di Sabatino, Antonio
    de Bruyn, Jessica R.
    Rimola, Jordi
    Brito, Jorge
    Bettenworth, Dominik
    van Assche, Gert
    Bemelman, Willem
    d'Hoore, Andre
    Pellino, Gianluca
    Dignass, Axel U.
    [J]. JOURNAL OF CROHNS & COLITIS, 2016, 10 (08): : 873 - 885
  • [6] ECCO topical review on transitional care in inflammatory bowel disease
    van Rheenen, P.
    [J]. JOURNAL OF CROHNS & COLITIS, 2017, 11 : S30 - S31
  • [7] European Crohn's and Colitis Organisation topical review on environmental factors in IBD
    Maaser, C.
    Langholz, E.
    Gordon, H.
    Burisch, J.
    Ellul, P.
    Hernandez, V.
    Karakan, T.
    Katsanos, K. H.
    Krustins, E.
    Levine, A.
    Mantzaris, G. J.
    O'Morain, C.
    Yuksel, E. S.
    Strid, H.
    Annese, V.
    [J]. JOURNAL OF CROHNS & COLITIS, 2017, 11 : S26 - S26
  • [8] European Crohn's and Colitis Organisation Topical Review on Environmental Factors in IBD
    Maaser, Christian
    Langholz, Ebbe
    Gordon, Hannah
    Burisch, Johan
    Ellul, Pierre
    Ramirez, Vicent Hernandez
    Karakan, Tarkan
    Katsanos, Konstantinos H.
    Krustins, Eduards
    Levine, Arie
    Mantzaris, Gerassimos J.
    O'Morain, Colm
    Strid, Hans
    Yuksel, Elif Saritas
    Annese, Vito
    [J]. JOURNAL OF CROHNS & COLITIS, 2017, 11 (08): : 905 - 920
  • [9] Improving Morbidity in Inflammatory Bowel Disease: An Audit of Compliance with the European Crohn's and Colitis Organisation Guidelines
    Fairbanks, J.
    Shah, A.
    Torrance, A.
    [J]. BRITISH JOURNAL OF SURGERY, 2018, 105 : 76 - 77
  • [10] Quality of Care Standards in Inflammatory Bowel Diseases: a European Crohn's and Colitis Organisation [ECCO] Position Paper
    Fiorino, Gionata
    Lytras, Theodore
    Younge, Lisa
    Fidalgo, Catarina
    Coenen, Sofie
    Chaparro, Maria
    Allocca, Mariangela
    Arnott, Ian
    Bossuyt, Peter
    Burisch, Johan
    Campmans-Kuijpers, Marjo
    de Ridder, Lissy
    Dignass, Axel
    Drohan, Ciara
    Feakins, Roger
    Gilardi, Daniela
    Grosek, Jan
    Gross, Evelyn
    Hart, Ailsa
    Jaghult, Susanna
    Katsanos, Konstantinos
    Lonnfors, Sanna
    Panis, Yves
    Perovic, Marko
    Pierik, Marieke
    Rimola, Jordi
    Tulchinsky, Hagit
    Gisbert, Javier P.
    [J]. JOURNAL OF CROHNS & COLITIS, 2020, 14 (08): : 1037 - 1048