TREATMENT OF GIRLS AND WOMEN WITH HAEMOPHILIA A AND HAEMOPHILIA B: A RETROSPECTIVE STUDY IN THE FRANCECOAG COHORT

被引:0
|
作者
Viprey, M. [1 ,2 ]
Castet, S. [3 ]
Lienhart, A. [4 ]
Petesch, B. Pan [5 ]
Frotscher, B. [6 ]
Guillet, B. [7 ]
Biron-Andreani, C. [8 ]
Wibaut, B. [9 ]
Tardy, B. [10 ]
Girault, S. [11 ]
Sigaud, M. [12 ]
Stieltjes, N. [13 ]
Dien, M. [14 ]
Milien, V. [2 ]
Boucekine, M. [1 ,2 ]
Chambost, H. [2 ,15 ,16 ]
d'Oiron, R. [17 ,18 ]
机构
[1] Aix Marseille Univ, UPRESS, CEReSS Ctr Etud & Rech Syst Sante, EA 3279, Marseille, France
[2] AP HM, FranceCoag Coordinating Ctr, Marseille, France
[3] CHU Bordeaux, Haemophilia Treatment Ctr, Bordeaux, France
[4] HCL, Reference Haemophilia Ctr, Bron, France
[5] CHU Brest, Haemophilia Treatment Ctr, Brest, France
[6] CHU Nancy, Haemophilia Treatment Ctr, Nancy, France
[7] CHU Rennes, Haemophilia Treatment Ctr, Rennes, France
[8] CHU Montpellier, Haemophilia Treatment Ctr, Montpellier, France
[9] CHU Montpellier, Haemophilia Treatment Ctr, Marseille, France
[10] CHU St Etienne, Haemophilia Treatment Ctr, St Etienne, France
[11] CHU Limoges, Haemophilia Treatment Ctr, Limoges, France
[12] CHU Nantes, Haemophilia Treatment Ctr, Nantes, France
[13] Hop Cochin, AP HP, Haemophilia Treatment Ctr, Paris, France
[14] AFH, Women Comm, Paris, France
[15] AP HM, Haemophilia Treatment Ctr, Marseille, France
[16] Aix Marseille Univ, C2VN, INRA, INSERM, Marseille, France
[17] Paris Saclay Hop Bicetre, AP HP, Haemophilia Reference Ctr, Paris, France
[18] INSERM, U1176, Le Kremlin Bicetre, France
关键词
D O I
暂无
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
OR02
引用
收藏
页码:21 / 21
页数:1
相关论文
共 50 条
  • [1] Women and girls with haemophilia: A retrospective cohort study in China
    Zhang, Wenhui
    Li, Kuixing
    Poon, Man-Chiu
    Zhang, Xinsheng
    Wu, Jingsheng
    Zhao, Xielan
    Zhou, Min
    Wang, Xuefeng
    Zhang, Mei
    Xu, Weiqun
    Yang, Linhua
    Huang, Meijuan
    Jin, Chenghao
    Wang, Xiaomin
    Zhang, Donglei
    Chen, Lingling
    Liu, Wei
    Zhang, Lei
    Xue, Feng
    Yang, Renchi
    [J]. HAEMOPHILIA, 2023, 29 (02) : 578 - 590
  • [2] Age at diagnosis is delayed in women/girls with haemophilia compared to men/boys: a FranceCoag report
    Viprey, Marie
    Volot, Fabienne
    Falaise, Celine
    Mourey, Guillaume
    Gillet, Benjamin
    Huguenin, Yoann
    Meunier, Sandrine
    De Gunzburg, Noemie
    Barbay, Virginie
    Bayart, Sophie
    Bally, Cecile
    Trossaert, Marc
    Claeyssens, Segolene
    Gay, Valerie
    Voyer, Anne-Lise
    Nyombe, Placide
    Gruel, Yves
    Lebreton, Aurelien
    Demay, Yohan
    Milien, Vanessa
    Boucekine, Mohamed
    Colle, Yannick
    Chambost, Herve
    d'Oiron, Roseline
    [J]. HAEMOPHILIA, 2020, 26 : 79 - 80
  • [3] The spectrum of bleeding in women and girls with haemophilia B
    Staber, J.
    Croteau, S. E.
    Davis, J.
    Grabowski, E. F.
    Kouides, P.
    Sidonio, R. F., Jr.
    [J]. HAEMOPHILIA, 2018, 24 (02) : 180 - 185
  • [4] Women and girls with haemophilia receiving care at specialized haemophilia treatment centres in the United States
    Miller, Connie H.
    Soucie, J. Michael
    Byams, Vanessa R.
    Payne, Amanda B.
    Sidonio, Robert F., Jr.
    Buckner, Tyler W.
    Bean, Christopher J.
    [J]. HAEMOPHILIA, 2021, 27 (06) : 1037 - 1044
  • [5] A European Retrospective Study of the Current Treatment Practice of Haemophilia B
    Berntorp, E.
    Dolan, G.
    Linari, S.
    Santagostino, E.
    Tosetto, A.
    Oldenburg, J.
    Scholz, U.
    Alvarez-Roman, T.
    Parra Lopez, R.
    Schved, J. -F.
    Trossaert, M.
    Holmstrom, M.
    Boban, A.
    Ludlam, C.
    Lethagen, S.
    [J]. HAEMOPHILIA, 2016, 22 : 58 - 58
  • [6] A retrospective study of the current treatment practice of haemophilia A and B in France
    Lethagen, S.
    Trossaert, M.
    Schved, J-F
    Ludlam, C.
    [J]. JOURNAL OF THROMBOSIS AND HAEMOSTASIS, 2016, 14 : 44 - 44
  • [7] Women and girls with haemophilia: Lessons learned
    d'Oiron, Roseline
    O'Brien, Sarah
    James, Andra H.
    [J]. HAEMOPHILIA, 2021, 27 : 75 - 81
  • [8] Genetic causes of haemophilia in women and girls
    Miller, Connie H.
    Bean, Christopher J.
    [J]. HAEMOPHILIA, 2021, 27 (02) : E164 - E179
  • [9] A retrospective study of the current treatment practice of haemophilia A and B in the United Kingdom
    Hay, C.
    Dolan, G.
    Berntorp, E.
    Ludlam, C.
    Myren, K-J
    Koskinen, L. O.
    Lethagen, S.
    [J]. JOURNAL OF THROMBOSIS AND HAEMOSTASIS, 2015, 13 : 861 - 861
  • [10] GIRLS AND WOMEN WITH HAEMOPHILIA ARE INSUFFICIENTLY INCLUDED IN REGISTRIES
    Maynadie, H.
    Gillet, B.
    Rafowicz, A.
    Lambert, T.
    Lavenu-Bombled, C.
    Matingou, M.
    Lezeau, P.
    Bendelac, L.
    Dalibard, V.
    Baumstarck, K.
    Colle, Y.
    Harroche, A.
    Deprez, D.
    Roussel-Robert, V.
    Chamouni, P.
    Repesse, Y.
    de Raucourt, E.
    Fournel, A.
    Volot, F.
    d'Oiron, R.
    [J]. HAEMOPHILIA, 2020, 26 : 83 - 83