Development of a quality of life measure specific for epidermolysis bullosa

被引:0
|
作者
Frew, J. W. [1 ,2 ]
Martin, L. K. [1 ]
Murrell, D. F. [1 ,2 ]
机构
[1] Gen Hosp St Georg, Sydney, NSW, Australia
[2] Univ New S Wales, Fac Med, Sydney, NSW, Australia
关键词
D O I
暂无
中图分类号
R75 [皮肤病学与性病学];
学科分类号
100206 ;
摘要
475
引用
下载
收藏
页码:S80 / S80
页数:1
相关论文
共 50 条
  • [1] Quality of life in epidermolysis bullosa
    Horn, HM
    Tidman, MJ
    CLINICAL AND EXPERIMENTAL DERMATOLOGY, 2002, 27 (08) : 707 - 710
  • [2] Quality of life evaluation in epidermolysis bullosa: Development of the QOLEB questionnaire
    Frew, J. W.
    Martin, L. K.
    Murrell, D. F.
    JOURNAL OF INVESTIGATIVE DERMATOLOGY, 2008, 128 (06) : 1607 - 1607
  • [3] The quality of life of children with epidermolysis bullosa
    Fragkou, D.
    Dimoutsi, V
    Galanis, P.
    ARCHIVES OF HELLENIC MEDICINE, 2020, 37 (03): : 315 - 322
  • [4] QUALITY OF LIFE IN PATIENTS WITH EPIDERMOLYSIS BULLOSA
    Tabolli, S.
    Uras, C.
    Paradisi, A.
    Sampogna, F.
    Di Pietro, C.
    Abeni, D.
    Zambruno, G.
    VALUE IN HEALTH, 2009, 12 (07) : A485 - A485
  • [5] Quality of life evaluation in epidermolysis bullosa
    Frew, John
    Martin, Linda
    Murrell, Dedee
    JOURNAL OF THE AMERICAN ACADEMY OF DERMATOLOGY, 2008, 58 (02) : AB81 - AB81
  • [6] Quality of life in patients with epidermolysis bullosa
    Tabolli, S.
    Sampogna, F.
    Di Pietro, C.
    Paradisi, A.
    Uras, C.
    Zotti, P.
    Castiglia, D.
    Zambruno, G.
    Abeni, D.
    BRITISH JOURNAL OF DERMATOLOGY, 2009, 161 (04) : 869 - 877
  • [7] Quality of life evaluation in epidermolysis bullosa (EB) through the development of the QOLEB questionnaire: an EB-specific quality of life instrument
    Frew, J. W.
    Martin, L. K.
    Nijsten, T.
    Murrell, D. F.
    BRITISH JOURNAL OF DERMATOLOGY, 2009, 161 (06) : 1323 - 1330
  • [8] Quality of life evaluation in epidermolysis bullosa: development and results of the QOLEB questionnaire
    Frew, J.
    Martin, L.
    Murrell, D. F.
    JOURNAL OF INVESTIGATIVE DERMATOLOGY, 2009, 129 (12) : 2911 - 2911
  • [9] Factors affecting quality of life in epidermolysis bullosa
    Pagliarello, Calogero
    Tabolli, Stefano
    EXPERT REVIEW OF PHARMACOECONOMICS & OUTCOMES RESEARCH, 2010, 10 (03) : 329 - 338
  • [10] Measuring quality of life in epidermolysis bullosa in Mexico: Cross-cultural validation of the Hispanic version of the Quality of Life in Epidermolysis Bullosa questionnaire
    Frew, John W.
    Cepeda Valdes, Rodrigo
    Fortuna, Giulio
    Murrell, Dedee F.
    Salas Alanis, Julio
    JOURNAL OF THE AMERICAN ACADEMY OF DERMATOLOGY, 2013, 69 (04) : 652 - 653