Interacting With Providers: An Intersectional Exploration of the Experiences of Carers of Aboriginal Children With a Disability

被引:24
|
作者
Green, Anna [1 ]
Abbott, Penelope [3 ]
Davidson, Patricia Mary [2 ,4 ]
Delaney, Patricia [1 ]
Delaney, John [1 ]
Patradoon-Ho, Patrick [5 ]
DiGiacomo, Michelle [1 ]
机构
[1] Univ Technol Sydney, Fac Hlth, POB 123, Sydney, NSW 2007, Australia
[2] Univ Technol Sydney, Fac Hlth, Cardiovasc & Chron Care, Sydney, NSW, Australia
[3] Univ Western Sydney, Dept Gen Practice, Penrith, NSW, Australia
[4] Johns Hopkins Univ, Sch Nursing, Baltimore, MD USA
[5] Western Sydney Local Hlth Dist, Blacktown, NSW, Australia
基金
澳大利亚研究理事会;
关键词
Aboriginal people; Australia; children; disability / disabled persons; caregivers; /; caregiving; health care; users; experiences; qualitative; interviews; FAMILY-CENTERED CARE; INTELLECTUAL DISABILITY; HEALTH RESEARCH; PUBLIC-HEALTH; SERVICE; PERSPECTIVES; CHALLENGES; INCLUSION; AUSTRALIA; FRAMEWORK;
D O I
10.1177/1049732318793416
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Intersectionality has potential to create new ways to describe disparities and craft meaningful solutions. This study aimed to explore Aboriginal carers' experiences of interactions with health, social, and education providers in accessing services and support for their child. Carers of Aboriginal children with a disability were recruited from an Australian metropolitan Aboriginal community-controlled health service. In-depth, semistructured interviews were conducted with 19 female carers. Intersectionality was applied as an analytical framework due to the inherent power differentials for Aboriginal Australians and carers for people with a disability. Marginalization and a lack of empowerment were evident in the experiences of interactions with providers due to cultural stereotypes and racism, lack of cultural awareness and sensitivity, and poverty and homelessness. Community-led models of care can help overcome the intersectional effects of these identities and forms of oppression in carers' interactions with providers and enhance access to care.
引用
收藏
页码:1923 / 1932
页数:10
相关论文
共 50 条
  • [1] Experiences and needs of carers of Aboriginal children with a disability: a qualitative study
    DiGiacomo, Michelle
    Green, Anna
    Delaney, Patricia
    Delaney, John
    Patradoon-Ho, Patrick
    Davidson, Patricia Mary
    Abbott, Penelope
    [J]. BMC FAMILY PRACTICE, 2017, 18
  • [2] Experiences and needs of carers of Aboriginal children with a disability: a qualitative study
    Michelle DiGiacomo
    Anna Green
    Patricia Delaney
    John Delaney
    Patrick Patradoon-Ho
    Patricia Mary Davidson
    Penelope Abbott
    [J]. BMC Family Practice, 18
  • [3] Dementia care-sharing and migration: An intersectional exploration of family carers' experiences
    Ahmad, Menal
    van den Broeke, Jennifer
    Saharso, Sawitri
    Tonkens, Evelien
    [J]. JOURNAL OF AGING STUDIES, 2022, 60
  • [4] Planning for the future: Exploring the experiences of older carers of adult children with a learning disability
    Deville, Jane
    Davies, Helen
    Kane, Ros
    Nelson, David
    Mansfield, Paul
    [J]. BRITISH JOURNAL OF LEARNING DISABILITIES, 2019, 47 (03) : 208 - 214
  • [5] The oral health-related experiences, attitudes and behaviours of the carers of Aboriginal children of Groote Eylandt
    Vaughn, HS
    Robinson, PG
    [J]. INTERNATIONAL DENTAL JOURNAL, 2003, 53 (03) : 132 - 140
  • [6] Patient violence towards their family carers: A qualitative exploration of carers' experiences in psychosis
    Wildman, E.
    Kuipers, E.
    Macmanus, D.
    Onwumere, J.
    [J]. EUROPEAN PSYCHIATRY, 2022, 65 : S113 - S113
  • [7] Carers' experiences of dementia support groups: A qualitative exploration
    West, Melanie
    Hogan, Kevin Francis
    [J]. COUNSELLING & PSYCHOTHERAPY RESEARCH, 2020, 20 (01): : 136 - 142
  • [8] Nursing home placement: an exploration of the experiences of family carers
    Ryan, AA
    Scullion, HF
    [J]. JOURNAL OF ADVANCED NURSING, 2000, 32 (05) : 1187 - 1195
  • [9] The experiences of Aboriginal and Torres Strait Islander carers in the child protection system
    Elarde, Patricia
    Tilbury, Clare
    [J]. CHILDREN AUSTRALIA, 2007, 32 (02) : 8 - 14
  • [10] Navigating the journey of Aboriginal childhood disability: a qualitative study of carers' interface with services
    Green, Anna
    Abbott, Penelope
    Delaney, Patricia
    Patradoon-Ho, Patrick
    Delaney, John
    Davidson, Patricia Mary
    DiGiacomo, Michelle
    [J]. BMC HEALTH SERVICES RESEARCH, 2016, 16 : 1 - 11