Walking the Line Between Hope And Hype: Palliative Care in the Era of New and Expensive Neuromuscular Therapies for Children and Adults

被引:0
|
作者
Noritz, Garey [1 ]
Feudtner, Chris [2 ]
机构
[1] Nationwide Childrens Hosp, Columbus, OH USA
[2] Childrens Hosp Philadelphia, Philadelphia, PA 19104 USA
关键词
D O I
10.1016/j.jpainsymman.2017.12.020
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
TH317
引用
收藏
页码:567 / 568
页数:2
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    Brocq, Helene
    Richelme, Christian
    Chappuis, Viviane
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    Pirpiris, M
    Wilkinson, AJ
    Rodda, J
    Nguyen, TC
    Baker, TJ
    Nattrass, GR
    Graham, HK
    [J]. JOURNAL OF PEDIATRIC ORTHOPAEDICS, 2003, 23 (03) : 302 - 307
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    Faughnan, Lane G.
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    Yang, Jie
    Kane, Javier R.
    [J]. PEDIATRIC ANESTHESIA, 2010, 20 (12) : 1070 - 1077
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  • [6] Utilising literature and systems theory to explore the intersections between policy, practice and equity of access to palliative care for older adults in Aotearoa New Zealand
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