QUALITY-OF-LIFE;
FAMILY CAREGIVERS;
PEANUT ALLERGY;
EDUCATIONAL-MATERIALS;
SOCIAL SUPPORT;
VALIDATION;
CANCER;
NEEDS;
CARE;
QUESTIONNAIRE;
D O I:
10.1136/bmjopen-2022-065772
中图分类号:
R5 [内科学];
学科分类号:
1002 ;
100201 ;
摘要:
Objective This study aimed to investigate the factors associated with parental burden among parents of children with food allergies (FA) in China. Design Cross-sectional study. Setting The participants were recruited through the Internet and one child health centre of a tertiary hospital in Changsha, China. Participants A total of 346 parents of children with FA were recruited using a convenience sampling method. After excluding the invalid questionnaires, 330 questionnaires were included for the analysis. Outcome measures The data of general and disease-specific information of children with FA and their parents, as well as parental burden, social support and coping style of parents, were collected using a self-developed questionnaire and standard measurement tools with good psychometric properties. Univariate analysis and multivariate stepwise regression analysis were used to analyse the data. Results Financial affordability regarding their children's FA and parents' social support were key protective factors against parental burden (beta=-0.224, p<0.001 and beta=-0.226, p<0.001, respectively). This study also found that parents' working conditions, the number of highly suspected food allergens, the number of children's FA-affected systems and whether children took amino acid milk powder were the factors associated with parental burden. Conclusions Health professionals should pay more attention to parents who are not at work and whose children have more highly suspected food allergens and more FA-affected systems because these parents often have a higher parental burden. Furthermore, it is important to improve financial support for children's FA and social support for parents of children with FA to decrease their parental burden.
机构:
Guangzhou Med Univ, Guangzhou Women & Childrens Med Ctr, Guangdong Prov Clin Res Ctr Child Hlth, Ophthalmol & Otorhinolaryngol Dept, Guangzhou, Peoples R ChinaGuangzhou Med Univ, Guangzhou Women & Childrens Med Ctr, Guangdong Prov Clin Res Ctr Child Hlth, Ophthalmol & Otorhinolaryngol Dept, Guangzhou, Peoples R China
Zhang, Yanan
Zhang, Xinwen
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机构:
Guangzhou Med Univ, Guangzhou Women & Childrens Med Ctr, Guangdong Prov Clin Res Ctr Child Hlth, Ophthalmol & Otorhinolaryngol Dept, Guangzhou, Peoples R ChinaGuangzhou Med Univ, Guangzhou Women & Childrens Med Ctr, Guangdong Prov Clin Res Ctr Child Hlth, Ophthalmol & Otorhinolaryngol Dept, Guangzhou, Peoples R China
Zhang, Xinwen
Jiang, Jinzhuo
论文数: 0引用数: 0
h-index: 0
机构:
South China Agr Univ, Coll Engn, Guangzhou, Peoples R ChinaGuangzhou Med Univ, Guangzhou Women & Childrens Med Ctr, Guangdong Prov Clin Res Ctr Child Hlth, Ophthalmol & Otorhinolaryngol Dept, Guangzhou, Peoples R China
Jiang, Jinzhuo
Xie, Wanhua
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h-index: 0
机构:
Guangzhou Med Univ, Guangzhou Women & Childrens Med Ctr, Guangdong Prov Clin Res Ctr Child Hlth, Outpatient Dept, 9 Jinsui Rd, Guangzhou 510623, Peoples R ChinaGuangzhou Med Univ, Guangzhou Women & Childrens Med Ctr, Guangdong Prov Clin Res Ctr Child Hlth, Ophthalmol & Otorhinolaryngol Dept, Guangzhou, Peoples R China
Xie, Wanhua
Xiang, Daoman
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h-index: 0
机构:
Guangzhou Med Univ, Guangzhou Women & Childrens Med Ctr, Guangdong Prov Clin Res Ctr Child Hlth, Ophthalmol & Otorhinolaryngol Dept, Guangzhou, Peoples R ChinaGuangzhou Med Univ, Guangzhou Women & Childrens Med Ctr, Guangdong Prov Clin Res Ctr Child Hlth, Ophthalmol & Otorhinolaryngol Dept, Guangzhou, Peoples R China
机构:
Sun Yat Sen Univ, Hosp Stomatol, Guangzhou 510055, Peoples R China
Guangdong Prov Key Lab Stomatol, Guangzhou 510080, Peoples R China
Sun Yat Sen Univ, Guanghua Sch Stomatol, Guangzhou 510080, Peoples R ChinaSun Yat Sen Univ, Hosp Stomatol, Guangzhou 510055, Peoples R China
Lin, Lude
Chen, Wanting
论文数: 0引用数: 0
h-index: 0
机构:
Sun Yat Sen Univ, Hosp Stomatol, Guangzhou 510055, Peoples R China
Guangdong Prov Key Lab Stomatol, Guangzhou 510080, Peoples R China
Sun Yat Sen Univ, Guanghua Sch Stomatol, Guangzhou 510080, Peoples R ChinaSun Yat Sen Univ, Hosp Stomatol, Guangzhou 510055, Peoples R China
Chen, Wanting
Zhong, Dejun
论文数: 0引用数: 0
h-index: 0
机构:
Guangdong Med Univ, Huizhou Maternal & Child Healthcare Hosp 2, Huizhou 516001, Peoples R ChinaSun Yat Sen Univ, Hosp Stomatol, Guangzhou 510055, Peoples R China
Zhong, Dejun
Cai, Xiayuan
论文数: 0引用数: 0
h-index: 0
机构:
Guangdong Med Univ, Huizhou Maternal & Child Healthcare Hosp 2, Huizhou 516001, Peoples R ChinaSun Yat Sen Univ, Hosp Stomatol, Guangzhou 510055, Peoples R China
Cai, Xiayuan
Chen, Jieyi
论文数: 0引用数: 0
h-index: 0
机构:
Sun Yat Sen Univ, Hosp Stomatol, Guangzhou 510055, Peoples R China
Guangdong Prov Key Lab Stomatol, Guangzhou 510080, Peoples R China
Sun Yat Sen Univ, Guanghua Sch Stomatol, Guangzhou 510080, Peoples R ChinaSun Yat Sen Univ, Hosp Stomatol, Guangzhou 510055, Peoples R China
Chen, Jieyi
Huang, Fang
论文数: 0引用数: 0
h-index: 0
机构:
Sun Yat Sen Univ, Hosp Stomatol, Guangzhou 510055, Peoples R China
Guangdong Prov Key Lab Stomatol, Guangzhou 510080, Peoples R China
Sun Yat Sen Univ, Guanghua Sch Stomatol, Guangzhou 510080, Peoples R ChinaSun Yat Sen Univ, Hosp Stomatol, Guangzhou 510055, Peoples R China
机构:
Deyang Peoples Hosp, Dept Pediat, Deyang, Sichuan, Peoples R ChinaDeyang Peoples Hosp, Dept Pediat, Deyang, Sichuan, Peoples R China
Yang, Fang
Zhou, Jingru
论文数: 0引用数: 0
h-index: 0
机构:
Deyang Peoples Hosp, Dept Pediat, Deyang, Sichuan, Peoples R ChinaDeyang Peoples Hosp, Dept Pediat, Deyang, Sichuan, Peoples R China
Zhou, Jingru
Xiao, Hongying
论文数: 0引用数: 0
h-index: 0
机构:
Deyang Peoples Hosp, Dept Pediat, Deyang, Sichuan, Peoples R ChinaDeyang Peoples Hosp, Dept Pediat, Deyang, Sichuan, Peoples R China
Xiao, Hongying
Wu, Xia
论文数: 0引用数: 0
h-index: 0
机构:
Deyang Peoples Hosp, Dept Pediat, Deyang, Sichuan, Peoples R ChinaDeyang Peoples Hosp, Dept Pediat, Deyang, Sichuan, Peoples R China
Wu, Xia
Cui, Yingjuan
论文数: 0引用数: 0
h-index: 0
机构:
North Sichuan Med Coll, Dept Surg, Affiliated Hosp, Nanchong, Sichuan, Peoples R ChinaDeyang Peoples Hosp, Dept Pediat, Deyang, Sichuan, Peoples R China
Cui, Yingjuan
Huang, Houqiang
论文数: 0引用数: 0
h-index: 0
机构:
Southwest Med Univ, Nursing Dept, Affiliated Hosp, Luzhou, Sichuan, Peoples R ChinaDeyang Peoples Hosp, Dept Pediat, Deyang, Sichuan, Peoples R China
Huang, Houqiang
Zheng, Silin
论文数: 0引用数: 0
h-index: 0
机构:
Southwest Med Univ, Nursing Dept, Affiliated Hosp, Luzhou, Sichuan, Peoples R ChinaDeyang Peoples Hosp, Dept Pediat, Deyang, Sichuan, Peoples R China
Zheng, Silin
Li, Huawei
论文数: 0引用数: 0
h-index: 0
机构:
Nanjing Univ Chinese Med, Nephrol Dept, Affiliated Hosp, Nanjing, Jiangsu, Peoples R ChinaDeyang Peoples Hosp, Dept Pediat, Deyang, Sichuan, Peoples R China
机构:
The Affiliated Hospital of Yangzhou University,Department of PediatricsThe Affiliated Hospital of Yangzhou University,Department of Pediatrics
Yong-xia Wang
Wen Luo
论文数: 0引用数: 0
h-index: 0
机构:
Yangzhou University,School of Nursing & School of Public HealthThe Affiliated Hospital of Yangzhou University,Department of Pediatrics
Wen Luo
Xin-xin Sun
论文数: 0引用数: 0
h-index: 0
机构:
Qian-deng Town Community Health Service Center,undefinedThe Affiliated Hospital of Yangzhou University,Department of Pediatrics
Xin-xin Sun
Lin-fei Ye
论文数: 0引用数: 0
h-index: 0
机构:
Yangzhou Maternal and Child Health Hospital (Affiliated Hospital of Yangzhou University),undefinedThe Affiliated Hospital of Yangzhou University,Department of Pediatrics
Lin-fei Ye
Ye Zhang
论文数: 0引用数: 0
h-index: 0
机构:
Yangzhou Maternal and Child Health Hospital (Affiliated Hospital of Yangzhou University),undefinedThe Affiliated Hospital of Yangzhou University,Department of Pediatrics
Ye Zhang
Hong-wen Yao
论文数: 0引用数: 0
h-index: 0
机构:
Yangzhou Maternal and Child Health Hospital (Affiliated Hospital of Yangzhou University),undefinedThe Affiliated Hospital of Yangzhou University,Department of Pediatrics
Hong-wen Yao
Yuexia Liao
论文数: 0引用数: 0
h-index: 0
机构:
Yangzhou Maternal and Child Health Hospital (Affiliated Hospital of Yangzhou University),undefinedThe Affiliated Hospital of Yangzhou University,Department of Pediatrics