Extending PROMIS and neuro-QOL to Huntington disease: new measures of chorea, speech and swallowing difficulties, and end of life concerns

被引：0

作者：

Carlozzi, Noelle ^{[1
]}

Lai, Jin-Shei ^{[2
]}

Schilling, Stephen ^{[1
]}

Hahn, Elizabeth A. ^{[3
]}

Kratz, Anna ^{[1
]}

Downing, Nancy ^{[4
]}

Paulsen, Jane ^{[4
]}

Nance, Martha ^{[5
]}

Nicollet, Park

Dayalu, Praveen ^{[1
]}

Perlmutter, Joel ^{[6
]}

McCormack, Michael ^{[7
]}

Quaid, Kimberly ^{[8
]}

Ross, Christopher ^{[9
]}

Perlman, Susan ^{[10
]}

Miner, Jennifer ^{[1
]}

Barton, Stacey ^{[6
]}

Marin, Humberto ^{[11
]}

Geschwind, Michael ^{[12
]}

Rao, Stephen ^{[13
]}

Gershon, Richard C. ^{[3
]}

Cella, David ^{[3
]}

机构：

[1] Univ Michigan, Ann Arbor, MI 48109 USA

[2] Northwestern Univ, Chicago, IL 60611 USA

[3] Northwestern Univ, Feinberg Sch Med, Chicago, IL 60611 USA

[4] Univ Iowa, Cedar Rapids, IA USA

[5] Pk Nicollet, Golden Valley, MN USA

[6] Washington Univ, St Louis, MO USA

[7] Rowan Univ, Glassboro, NJ USA

[8] Indiana Univ, Indianapolis, IN 46204 USA

[9] Johns Hopkins Univ, Baltimore, MD USA

[10] Univ Calif Los Angeles, Los Angeles, CA USA

[11] Rutgers State Univ, Piscataway, NJ USA

[12] UCSF, San Francisco, CA USA

[13] Cleveland Clin, Cleveland, OH 44106 USA

来源：

QUALITY OF LIFE RESEARCH | 2015年 / 24卷

关键词：

D O I：

暂无

中图分类号：

R19 [保健组织与事业（卫生事业管理）];

学科分类号：

摘要：

302.3

引用

页码：66 / 66

页数：1

共 16 条

[1] Validation of Neuro-QoL and PROMIS Mental Health Patient Reported Outcome Measures in Persons with Huntington Disease
Carlozzi, Noelle E.
Goodnight, Siera
Kratz, Anna L.
Stout, Julie C.
McCormack, Michael K.
Paulsen, Jane S.
Boileau, Nicholas R.
Cella, David
Ready, Rebecca E.
[J]. JOURNAL OF HUNTINGTONS DISEASE, 2019, 8 (04) : 467 - 482
[2] Evaluating cognition in individuals with Huntington disease: Neuro-QoL cognitive functioning measures
Jin-Shei Lai
Siera Goodnight
Nancy R. Downing
Rebecca E. Ready
Jane S. Paulsen
Anna L. Kratz
Julie C. Stout
Michael K. McCormack
David Cella
Christopher Ross
Jenna Russell
Noelle E. Carlozzi
[J]. Quality of Life Research, 2018, 27 : 811 - 822
[3] Evaluating cognition in individuals with Huntington disease: Neuro-QoL cognitive functioning measures
Lai, Jin-Shei
Goodnight, Siera
Downing, Nancy R.
Ready, Rebecca E.
Paulsen, Jane S.
Kratz, Anna L.
Stout, Julie C.
McCormack, Michael K.
Cella, David
Ross, Christopher
Russell, Jenna
Carlozzi, Noelle E.
[J]. QUALITY OF LIFE RESEARCH, 2018, 27 (03) : 811 - 822
[4] Extending the Neuro-QOL to Huntington's Disease (HD): The development of the HD-HRQOL
Carlozzi, Noelle E.
McGowan, Heather
Tulsky, David S.
[J]. QUALITY OF LIFE RESEARCH, 2010, 19 : 98 - 98
[5] HDQLIFE and Neuro-QoL Physical Function Measures: Responsiveness in Persons With Huntington's Disease
Carlozzi, Noelle E.
Boileau, Nicholas R.
Chou, Kelvin L.
Ready, Rebecca E.
Cella, David
McCormack, Michael K.
Miner, Jennifer A.
Dayalu, Praveen
[J]. MOVEMENT DISORDERS, 2020, 35 (02) : 326 - 336
[6] Patient-Reported Outcome Measures in Huntington Disease: Quality of Life in Neurological Disorders (Neuro-QoL) Social Functioning Measures
Carlozzi, Noelle E.
Hahn, Elizabeth A.
Goodnight, Siera M.
Kratz, Anna L.
Paulsen, Jane S.
Stout, Julie C.
Frank, Samuel
Miner, Jennifer A.
Cella, David
Gershon, Richard C.
Schilling, Stephen G.
Ready, Rebecca E.
[J]. PSYCHOLOGICAL ASSESSMENT, 2018, 30 (04) : 450 - 458
[7] Responsiveness to change over time and test-retest reliability of the PROMIS and Neuro-QoL mental health measures in persons with Huntington disease (HD)
Noelle E. Carlozzi
Nicholas R. Boileau
Matthew W. Roché
Rebecca E. Ready
Joel S. Perlmutter
Kelvin L. Chou
Stacey K. Barton
Michael K. McCormack
Julie C. Stout
David Cella
Jennifer A. Miner
Jane S. Paulsen
[J]. Quality of Life Research, 2020, 29 : 3419 - 3439
[8] Responsiveness to change over time and test-retest reliability of the PROMIS and Neuro-QoL mental health measures in persons with Huntington disease (HD)
Carlozzi, Noelle E.
Boileau, Nicholas R.
Roche, Matthew W.
Ready, Rebecca E.
Perlmutter, Joel S.
Chou, Kelvin L.
Barton, Stacey K.
McCormack, Michael K.
Stout, Julie C.
Cella, David
Miner, Jennifer A.
Paulsen, Jane S.
[J]. QUALITY OF LIFE RESEARCH, 2020, 29 (12) : 3419 - 3439
[9] Responsiveness to Change Over Time: An Examination of the Neuro-QoL Social Function Measures in Persons with Huntington's Disease
Carlozzi, Noelle E.
Boileau, Nicholas R.
Hahn, Elizabeth A.
Barton, Stacey K.
Cella, David
McCormack, Michael K.
Ready, Rebecca E.
[J]. JOURNAL OF HUNTINGTONS DISEASE, 2020, 9 (01) : 83 - 97
[10] Patient-Reported Outcomes in Huntington's Disease: Quality of Life in Neurological Disorders (Neuro-QoL) and Huntington's Disease Health-Related Quality of Life (HDQLIFE) Physical Function Measures
Carlozzi, Noelle E.
Ready, Rebecca E.
Frank, Samuel
Cella, David
Hahn, Elizabeth A.
Goodnight, Siera M.
Schilling, Stephen G.
Boileau, Nicholas R.
Dayalu, Praveen
[J]. MOVEMENT DISORDERS, 2017, 32 (07) : 1096 - 1102

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