QOLIBRI Overall Scale: a brief index of health-related quality of life after traumatic brain injury

被引:105
|
作者
von Steinbuechel, Nicole [2 ]
Wilson, Lindsay [1 ]
Gibbons, Henning [2 ]
Muehlan, Holger [3 ]
Schmidt, Holger [4 ]
Schmidt, Silke [4 ]
Sasse, Nadine [2 ]
Koskinen, Sanna [5 ]
Sarajuuri, Jaana [5 ]
Hoefer, Stefan [6 ]
Bullinger, Monika [7 ]
Maas, Andrew [8 ]
Neugebauer, Edmund [9 ]
Powell, Jane [10 ]
von Wild, Klaus [11 ]
Zitnay, George [12 ]
Bakx, Wilbert [13 ]
Christensen, Anne-Lise [14 ,15 ]
Formisano, Rita [16 ]
Hawthorne, Graeme [17 ]
Truelle, Jean-Luc [18 ]
机构
[1] Univ Stirling, Dept Psychol, Div Psychol, Stirling FK9 4LA, Scotland
[2] Univ Gottingen, Dept Med Psychol & Med Sociol, Gottingen, Germany
[3] Univ Greifswald, Dept Hlth & Prevent, Greifswald, Germany
[4] Univ Med Ctr, Dept Neurol, Gottingen, Germany
[5] Kapyla Rehabil Ctr, Unit Clin Neuropsychol & Psychol, Helsinki, Finland
[6] Innsbruck Med Univ, Dept Med Psychol, Innsbruck, Austria
[7] Univ Hamburg, Inst & Poliklin Med Psychol, Hamburg, Germany
[8] Univ Antwerp Hosp, Dept Neurosurg, Antwerp, Belgium
[9] Univ Witten Herdecke, Inst Res Operat Med, Cologne, Germany
[10] Univ London, Dept Psychol, London, England
[11] Univ Munster, Munster, Germany
[12] Univ Pittsburgh, Sch Med, Pittsburgh, PA USA
[13] Maastricht Univ, Adelante Adult Rehabil Ctr, Maastricht, Netherlands
[14] Univ Copenhagen, Ctr Rehabil Brain Injury, Copenhagen, Denmark
[15] Univ Copenhagen, Ctr Cognit & Memory, Copenhagen, Denmark
[16] IRCCS Fdn Santa Lucia, Rome, Italy
[17] Univ Melbourne, Dept Psychiat, Melbourne, Vic 3010, Australia
[18] Univ Hosp Garches, Rehabil Dept, Garches, France
来源
关键词
SATISFACTION;
D O I
10.1136/jnnp-2012-302361
中图分类号
R74 [神经病学与精神病学];
学科分类号
摘要
Background The Quality of Life after Brain Injury (QOLIBRI) scale is a recently developed instrument that provides a profile of health-related quality of life (HRQoL) in domains typically affected by brain injury. However, for global assessment it is desirable to have a brief summary measure. This study examined a 6-item QOLIBRI Overall Scale (QOLIBRI-OS), and considered whether it could provide an index of HRQoL after traumatic brain injury (TBI). Methods The properties of the QOLIBRI-OS were studied in a sample of 792 participants with TBI recruited from centres in nine countries covering six languages. An examination of construct validity was undertaken on a subsample of 153 participants recruited in Germany who had been assessed on two relevant brief quality of life measures, the Satisfaction With Life Scale and the Quality of Life Visual Analogue Scale. Results The reliability of the QOLIBRI-OS was good (Cronbach's a 0.86, test-retest reliability =0.81) and similar in participants with higher and lower cognitive performance. Factor analysis indicated that the scale is unidimensional. Rasch analysis also showed a satisfactory fit with this model. The QOLIBRI-OS correlates highly with the total score from the full QOLIBRI scale (r=0.87). Moderate to strong relationships were found among the QOLIBRI-OS and the Extended Glasgow Outcome Scale, Short-Form-36, and Hospital Anxiety and Depression scale (r=0.54 to -0.76). The QOLIBRI-OS showed good construct validity in the TBI group. Conclusions The QOLIBRI-OS assesses a similar construct to the QOLIBRI total score and can be used as a brief index of HRQoL for TBI.
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收藏
页码:1041 / 1047
页数:7
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