Need for creating Polish registry of multiple sclerosis patients

被引:7
|
作者
Brola, Waldemar [1 ]
Fudala, Malgorzata [1 ]
Flaga, Stanislaw [2 ]
Ryglewicz, Danuta [3 ]
机构
[1] Szpitala Specjalistycznego, Oddzial Neurol, Oddzialem Udarowym, Konskich, Poland
[2] Akad Gorniczno Hutnicza, Krakowie, Poland
[3] Inst Psychiat & Neurol, Klin Neurol 1, Warsaw, Poland
关键词
multiple sclerosis; epidemiology; patients registry; NARCOMS REGISTRY; MSBASE REGISTRY; MS; PREVALENCE; DATABASE; EPIDEMIOLOGY; INFORMATION; DISABILITY; DENMARK; CARE;
D O I
10.5114/ninp.2013.38228
中图分类号
R74 [神经病学与精神病学];
学科分类号
摘要
Multiple sclerosis (MS) is the most common cause of neurological disability of young people. It is estimated that 40 000-60 000 people in the country suffer from MS, and approximately 2000 new cases are diagnosed annually. These are, however, estimated data and require verification by nation-wide research. Results published so far concern only certain regions of Poland. It is also vital to precisely describe the needs of patients in terms of immunomodulating treatment and to perform detailed pharmacoeconomical analysis. In order to estimate basic epidemiological parameters there is a need of creating, in imitation of many other countries, a national register of MS patients which would concentrate all assets concerning MS around this project. The article presented the most important of American and European databases and explained the basis of the Polish register of MS patients, which is already functioning in one of the regions.
引用
收藏
页码:484 / 492
页数:9
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