ERN ReCONNET, EUROPEAN REFERENCE NETWORK ON RARE AND COMPLEX CONNECTIVE TISSUE AND MUSCULOSKELETAL DISEASES: FIRST YEAR ACTIVITY

被引：0

作者：

Mosca, M. ^{[1
]}

Cutolo, M. ^{[2
]}

Badreh, S. ^{[3
]}

Bombardieri, S. ^{[4
]}

Burmester, G. ^{[5
]}

Fonseca, J. E. ^{[6
]}

Frank, C. ^{[7
]}

Galetti, I. ^{[8
]}

Hachulla, E. ^{[9
]}

Houssiau, F. ^{[10
]}

Muller-Ladner, U. ^{[11
]}

Schneider, M. ^{[12
]}

Smith, V. ^{[13
]}

van Laar, J. ^{[14
]}

机构：

[1] Azienda Osped Univ Pisana, Pisa, Italy

[2] IRCCS AOU San Martino, Genoa, Italy

[3] Lupus Europe, Romford, Essex, England

[4] Univ Pisa, Pisa, Italy

[5] Charite Univ Med Berlin, Berlin, Germany

[6] Ctr Hosp Lisboa Norte, Lisbon, Portugal

[7] Bindweefsel, Koersel, Belgium

[8] Federat European Scleroderma Assoc FESCA, Brussels, Belgium

[9] CHRU Lille, Lille, France

[10] Univ Hosp St Luc, Brussels, Belgium

[11] Kerckhoff Klin, Bad Nauheim, Germany

[12] Univ Klinikum Dusseldorf, Dusseldorf, Germany

[13] Univ Hosp Ghent, Ghent, Belgium

[14] Univ Med Ctr Utrecht, Utrecht, Netherlands

来源：

CLINICAL AND EXPERIMENTAL RHEUMATOLOGY | 2018年 / 36卷 / 01期

关键词：

D O I：

暂无

中图分类号：

R5 [内科学];

学科分类号：

1002 ; 100201 ;

摘要：

S4:5

引用

页码：S26 / S27

页数：2

共 50 条

[1] THE EUROPEAN REFERENCE NETWORK ON RARE AND COMPLEX CONNECTIVE TISSUE AND MUSCULOSKELETAL DISEASES: ERN RECONNET
Mosca, M.
Cutolo, M.
Badreh, S.
Bombardieri, S.
Burmester, G.
Fonseca, J. E.
Frank, C.
Galetti, I.
Hachulla, E.
Houssiau, F.
Mueller-Ladner, U.
Schneider, M.
Smith, V.
van Laar, J.
[J]. ANNALS OF THE RHEUMATIC DISEASES, 2018, 77 : 1679 - 1679
[2] Clinical practice guidelines: the first year of activity of the European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases (ERN ReCONNET)
Mosca, Marta
Cutolo, Maurizio
Stefano, Bombardieri
Gerd, Burmester
Eurico, Fonseca Joao
Charissa, Frank
Ilaria, Galetti
Eric, Hachulla
Frederic, Houssiau
Ulf, Mueller-Ladner
Matthias, Schneider
Vanessa, Smith
Jacob, van Laar
Ana, Vieira
Zahir, Amoura
Tadej, Avcin
Lorenzo, Beretta
Gerd, Burmester
Maurizio, Cutolo
Jeska, de Vries-Bouwstra K.
Andrea, Doria
Alessandro, Ferraris
Thomas, Krieg
Fransiska, Malfait
Thierry, Martin
Marco, Matucci Cerinic
Carlomaurizio, Montecucco
Maria, Moraes-Fontes Francisca
Marta, Mosca
Luc, Mouthon
Simona, Rednic
Angela, Tincani
Van Hagen, P. M.
Martina, Basile
Alain, Cornet
Vera, Guimaraes
Juergen, Grunert
Lisa, Matthews
Ana, Vieira
[J]. RMD OPEN, 2018, 4
[3] The added value of a European Reference Network on rare and complex connective tissue and musculoskeletal diseases: insights after the first 5 years of the ERN ReCONNET
Talarico, R.
Aguilera, S.
Alexander, T.
Amoura, Z.
Andersen, J.
Arnaud, L.
Avcin, T.
Barril, S. Marsal
Beretta, L.
Bombardieri, S.
Bortoluzzi, A.
Bouillot, C.
Bulina, I
Burmester, G. R.
Cannizzo, S.
Cavagna, L.
Chaigne, B.
Cornet, A.
Corti, P.
Costedoat-Chalumeau, N.
Davidsone, Z.
Doria, A.
Fenech, C.
Ferraris, A.
Fischer-Betz, R.
Fonseca, J. E.
Frank, C.
Gaglioti, A.
Galetti, I
Guimaraes, V
Hachulla, E.
Holmner, M.
Houssiau, F.
Iaccarino, L.
Jacobsen, S.
Limper, M.
Malfait, F.
Mariette, X.
Marinello, D.
Martin, T.
Matthews, L.
Matucci-Cerinic, M.
Meyer, A.
Milas-Ahic, J.
Moinzadeh, P.
Montecucco, C.
Mouthon, L.
Mueller-Ladner, U.
Nagy, G.
Patarata, E.
[J]. CLINICAL AND EXPERIMENTAL RHEUMATOLOGY, 2022, 40 (05) : S3 - S11
[4] PATIENT EDUCATION IN THE EUROPEAN REFERENCE NETWORK ON RARE AND COMPLEX CONNECTIVE TISSUE AND MUSCULOSKELETAL DISEASES (ERN RECONNET): UNMET NEEDS FROM THE HEALTH CAREPROVIDERS SIDE AND FROM THE PATIENTS' SIDE
Farhat, Meryem-Maud
Cornet, Alain
Frank, Charissa
Galetti, Ilaria
Grunert, Juergen
Guimaraes, Vera
Matthews, Lisa
Vieira, Ana
Hachulla, Eric
[J]. ANNALS OF THE RHEUMATIC DISEASES, 2019, 78 : 1443 - 1443
[5] The impact of COVID-19 on rare and complex connective tissue diseases: the experience of ERN ReCONNET
Rosaria Talarico
Silvia Aguilera
Tobias Alexander
Zahir Amoura
Ana M. Antunes
Laurent Arnaud
Tadej Avcin
Lorenzo Beretta
Stefano Bombardieri
Gerd R. Burmester
Sara Cannizzo
Lorenzo Cavagna
Benjamin Chaigne
Alain Cornet
Nathalie Costedoat-Chalumeau
Andrea Doria
Alessandro Ferraris
Rebecca Fischer-Betz
João E. Fonseca
Charissa Frank
Andrea Gaglioti
Ilaria Galetti
Jürgen Grunert
Vera Guimarães
Eric Hachulla
Frederic Houssiau
Luca Iaccarino
Thomas Krieg
Marteen Limper
Fransiska Malfait
Xavier Mariette
Diana Marinello
Thierry Martin
Lisa Matthews
Marco Matucci-Cerinic
Alain Meyer
Carlomaurizio Montecucco
Luc Mouthon
Ulf Müller-Ladner
Simona Rednic
Vasco C. Romão
Matthias Schneider
Vanessa Smith
Alberto Sulli
Farah Tamirou
Domenica Taruscio
Anna V. Taulaigo
Enrique Terol
Angela Tincani
Simone Ticciati
[J]. Nature Reviews Rheumatology, 2021, 17 : 177 - 184
[6] The impact of COVID-19 on rare and complex connective tissue diseases: the experience of ERN ReCONNET
Talarico, Rosaria
Aguilera, Silvia
Alexander, Tobias
Amoura, Zahir
Antunes, Ana M.
Arnaud, Laurent
Avcin, Tadej
Beretta, Lorenzo
Bombardieri, Stefano
Burmester, Gerd R.
Cannizzo, Sara
Cavagna, Lorenzo
Chaigne, Benjamin
Cornet, Alain
Costedoat-Chalumeau, Nathalie
Doria, Andrea
Ferraris, Alessandro
Fischer-Betz, Rebecca
Fonseca, Joao E.
Frank, Charissa
Gaglioti, Andrea
Galetti, Ilaria
Grunert, Juergen
Guimaraes, Vera
Hachulla, Eric
Houssiau, Frederic
Iaccarino, Luca
Krieg, Thomas
Limper, Marteen
Malfait, Fransiska
Mariette, Xavier
Marinello, Diana
Martin, Thierry
Matthews, Lisa
Matucci-Cerinic, Marco
Meyer, Alain
Montecucco, Carlomaurizio
Mouthon, Luc
Mueller-Ladner, Ulf
Rednic, Simona
Romao, Vasco C.
Schneider, Matthias
Smith, Vanessa
Sulli, Alberto
Tamirou, Farah
Taruscio, Domenica
Taulaigo, Anna V.
Terol, Enrique
Tincani, Angela
Ticciati, Simone
[J]. NATURE REVIEWS RHEUMATOLOGY, 2021, 17 (03) : 177 - 184
[7] IDENTIFICATION OF UNMET NEEDS RELATED TO RARE AND COMPLEX CONNECTIVE TISSUE AND MUSCULOSKELETAL DISEASES (RCTDS) ACROSS EU: THE EXPERIENCE OF THE ERN RECONNET
Marinello, Diana
Ticciati, Simone
Talarico, Rosaria
Alexander, Tobias
Arnaud, Laurent
Cavagna, Lorenzo
Beretta, Lorenzo
Chaigne, Benjamin
Cornet, Alain
Costedoat-Chalumeau, Nathalie
Fischer-Betz, Rebecca
Frank, Charissa Hermine
Galetti, Ilaria
Grunert, Juergen
Guimaraes, Vera
Iaccarino, Luca
Limper, Maarten
Malfait, Fransiska
Mariette, Xavier
Matthews, Lisa
Matucci-Cerinic, Marco
Meyer, Alain
Rednic, Simona
Romao, Vasco
Scire, Carlo Alberto
Smith, Vanessa
Sulli, Alberto
Tamirou, Farah
Taulaigo, Anna Viola
Tincani, Angela
Vieira, Ana
Cutolo, Maurizio
Mosca, Marta
[J]. ANNALS OF THE RHEUMATIC DISEASES, 2019, 78 : 999 - 999
[8] Rheumatology residency in a European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases centre: opportunities and challenges
Dourado, E.
Melo, A. T.
Pacini, G.
Pankow, A.
Klemm, P.
Cruz-Machado, A. R.
[J]. CLINICAL AND EXPERIMENTAL RHEUMATOLOGY, 2022, 40 (05) : S63 - S65
[9] Publisher Correction: The impact of COVID-19 on rare and complex connective tissue diseases: the experience of ERN ReCONNET
Rosaria Talarico
Silvia Aguilera
Tobias Alexander
Zahir Amoura
Ana M. Antunes
Laurent Arnaud
Tadej Avcin
Lorenzo Beretta
Stefano Bombardieri
Gerd R. Burmester
Sara Cannizzo
Lorenzo Cavagna
Benjamin Chaigne
Alain Cornet
Nathalie Costedoat-Chalumeau
Andrea Doria
Alessandro Ferraris
Rebecca Fischer-Betz
João E. Fonseca
Charissa Frank
Andrea Gaglioti
Ilaria Galetti
Jürgen Grunert
Vera Guimarães
Eric Hachulla
Frederic Houssiau
Luca Iaccarino
Thomas Krieg
Marteen Limper
Fransiska Malfait
Xavier Mariette
Diana Marinello
Thierry Martin
Lisa Matthews
Marco Matucci-Cerinic
Alain Meyer
Carlomaurizio Montecucco
Luc Mouthon
Ulf Müller-Ladner
Simona Rednic
Vasco C. Romão
Matthias Schneider
Vanessa Smith
Alberto Sulli
Farah Tamirou
Domenica Taruscio
Anna V. Taulaigo
Enrique Terol
Angela Tincani
Simone Ticciati
[J]. Nature Reviews Rheumatology, 2022, 18 : 734 - 734
[10] Clinical practice guidelines adherence, knowledge and awareness in rare and complex connective tissue diseases across Europe: results from the first ERN ReCONNET survey
Talarico, Rosaria
Marinello, Diana
Bombardieri, Stefano
Burmester, Gerd
Fonseca, Joao
Frank, Charissa
Galetti, Ilaria
Hachulla, Eric
Houssiau, Frederic
Mueller-Ladner, Ulf
Schneider, Matthias
Smith, Vanessa
Turchetti, Giuseppe
van Laar, Jacob M.
Vieira, Ana
Cutolo, Maurizio
Mosca, Marta
[J]. RMD OPEN, 2020, 6 (02): : 0

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