Health-related quality of life for infants in the neonatal intensive care unit

被引：18

作者：

Boss, R. D. ^{[1
]}

Kinsman, H. I.

Donohue, P. K. ^{[2
]}

机构：

[1] Johns Hopkins Univ, Sch Med, Dept Pediat, Div Neonatol, Baltimore, MD 21287 USA

[2] Johns Hopkins Bloomberg Sch Publ Hlth, Dept Populat Family & Reprod Hlth, Baltimore, MD USA

来源：

JOURNAL OF PERINATOLOGY | 2012年 / 32卷 / 12期

关键词：

health metrics; treatment burden; patient well-being; LOW-BIRTH-WEIGHT; CHILD HEALTH; VALIDITY; RELIABILITY; PRETERM; MORTALITY; PARENTS; PATIENT; SLEEP; BRAIN;

D O I：

10.1038/jp.2012.82

中图分类号：

R71 [妇产科学];

学科分类号：

100211 ;

摘要：

When discussing the benefits and burdens of medical interventions for critically ill infants, clinicians and families are challenged to weigh the uncertainties of treatment success with infant pain and suffering. Concrete measures of infant suffering or quality of life, which could inform infant care and decision-making are lacking. Although consistent and reliable health-related quality of life (HRQOL) definitions and measures have been extensively developed for adults and older children, they have not been relevant to neonates or infants. Advancing HRQOL research methodology is an objective of Healthy People 2020. This paper will review the evidence and practices relevant to HRQOL with a focus on intensive care and pediatric settings. We will highlight existing HRQOL measures, which could be adapted for neonates and existing neonatal intensive care unit measures and practices, which could inform new measures of HRQOL. Journal of Perinatology (2012) 32, 901-906; doi:10.1038/jp.2012.82; published online 28 June 2012

引用

页码：901 / 906

页数：6

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