Diabetes Attitudes Wishes and Needs 2 (DAWN2): A multinational, multi-stakeholder study of psychosocial issues in diabetes and person-centred diabetes care

被引:169
|
作者
Peyrot, Mark [1 ]
Burns, Katharina Kovacs [2 ]
Davies, Melanie [3 ]
Forbes, Angus [4 ]
Hermanns, Norbert [5 ]
Holt, Richard [6 ]
Kalra, Sanjay [7 ,8 ]
Nicolucci, Antonio [9 ]
Pouwer, Frans [10 ]
Wens, Johan [11 ]
Willaing, Ingrid [12 ]
Skovlund, Soren E. [13 ]
机构
[1] Loyola Univ Maryland, Dept Sociol, Baltimore, MD 21210 USA
[2] Univ Alberta, Edmonton Clin Hlth Acad, Interdisciplinary Hlth Res Acad, Edmonton, AB, Canada
[3] Univ Leicester, Dept Cardiovasc Sci, Leicester LE1 5WW, Leics, England
[4] Kings Coll London, Florence Nightingale Sch Nursing & Midwifery, Dept Primary & Intermediate Care, London WC2R 2LS, England
[5] Diabet Acad Mergentheim FIDAM, Res Inst, Bad Mergentheim, Germany
[6] Univ Southampton, Fac Med, Human Dev & Hlth Acad Unit, Southampton SO9 5NH, Hants, England
[7] Bharti Hosp, Karnal 132001, Haryana, India
[8] BRIDE, Karnal 132001, Haryana, India
[9] Consorzio Mario Negri Sud, Dept Clin Pharmacol & Epidemiol, Chieti, Italy
[10] Tilburg Univ, Dept Med & Clin Psychol, NL-5000 LE Tilburg, Netherlands
[11] Univ Antwerp, Dept Med & Hlth Sci, Primary & Interdisciplinary Care Antwerp, B-2020 Antwerp, Belgium
[12] Steno Diabet Ctr, Steno Hlth Promot Ctr, DK-2820 Gentofte, Denmark
[13] Novo Nordisk AS, Patient Res Advocacy & Support, Copenhagen, Denmark
基金
美国国家卫生研究院;
关键词
People with diabetes; Family members; Healthcare providers; Survey; Person-centred care; Psychosocial; Self-management; PATIENT ASSESSMENT; MANAGEMENT; VALIDATION;
D O I
10.1016/j.diabres.2012.11.016
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Aims: The Diabetes Attitudes Wishes and Needs 2 (DAWN2) study aims to provide a holistic assessment of diabetes care and management among people with diabetes (PWD), family members (FM), and healthcare professionals (HCPs) and explores potential drivers leading to active management. Methods: DAWN2 survey over 16,000 individuals (similar to 9000 PWD, similar to 2000 FM of PWD, and similar to 5000 HCPs) in 17 countries across 4 continents. Respondents complete a group-specific questionnaire; items are designed to allow cross-group comparisons on common topics. The questionnaires comprise elements from the original DAWN study (2001), as well as psychometrically validated instruments and novel questions developed for this study to assess self-management, attitudes/beliefs, disease impact/burden, psychosocial distress, health-related quality of life, healthcare provision/receipt, social support and priorities for improvement in the future. The questionnaires are completed predominantly online or by telephone interview, supplemented by face-to-face interviews in countries with low internet access. In each country, recruitment ensures representation of the diabetes population in terms of geographical distribution, age, gender, education and disease status. Discussion: DAWN2 aims to build on the original DAWN study to identify new avenues for improving diabetes care. This paper describes the study rationale, goals and methodology. (C) 2012 Elsevier Ireland Ltd. All rights reserved.
引用
收藏
页码:174 / 184
页数:11
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