Measuring quality of life in people with intellectual and multiple disabilities: Validation of the San Martin scale

被引:59
|
作者
Verdugo, Miguel A. [1 ]
Gomez, Laura E. [2 ]
Arias, Benito [3 ]
Navas, Patricia [4 ]
Schalock, Robert L. [5 ]
机构
[1] Univ Salamanca, Inst Community Integrat INICO, Salamanca 37005, Spain
[2] Univ Oviedo, Dept Psychol, Oviedo 33003, Spain
[3] Univ Valladolid, Dept Psychol, E-47011 Valladolid, Spain
[4] Ohio State Univ, Nisonger Ctr, Columbus, OH 43210 USA
[5] Hastings Coll Law, Hastings, NE 68901 USA
关键词
Profound intellectual and multiple disabilities; Intellectual; disability; Psychometric evaluation; Validation; Reliability; Measurement; Developmental disabilities; PSYCHOMETRIC PROPERTIES; CHALLENGING BEHAVIORS; ADAPTIVE-BEHAVIOR; ADULTS; INDIVIDUALS; INSTRUMENT; SELF; QUESTIONNAIRE; STRATEGIES; SERVICES;
D O I
10.1016/j.ridd.2013.10.025
中图分类号
G76 [特殊教育];
学科分类号
040109 ;
摘要
Although there are numerous quality of life instruments in the, field of intellectual disability, most of them are addressed to those, people with the highest levels of functioning, while only a few are, suitable for people with the lowest levels (i.e., people with profound, and severe intellectual disabilities, or people with intellectual and, developmental disabilities and other significant medical conditions or, disabilities). This study provides reliability and validity evidence of, the San Martin Scale, a 95-item Likert scale questionnaire that is, completed by a third-party respondent. The validation sample was composed, of 1770 people from Spain with intellectual and developmental, disabilities that showed extensive or pervasive support needs (8.7% had, mild intellectual disability, 28.25% moderate, 41.6% severe, and 21.4%, profound). The age of the participants ranged between 16 and 77 years old, (M = 7.78; SD = 12.32). The results suggested that the eight quality of, life domains assessed on the scale are reliable (Cronbach's alpha ranging, from .821 to .933). Confirmatory Factor Analyses provided construct, validity evidences related to the internal structure of the San Martin, Scale, and indicated that the eight first-order factor solution provided, the best fit to the data over unidimensional and hierarchical solutions. Implications of these findings and guidelines for further research are, discussed. (C) 2013 Elsevier Ltd. All rights reserved.
引用
收藏
页码:75 / 86
页数:12
相关论文
共 50 条
  • [1] Evaluating the quality of life of people with profound and multiple disabilities: Use of the San Martin Scale at the Obra San Martin Foundation
    Hierro Zorrilla, Irene
    Verdugo Alonso, Miguel Angel
    Gomez Sanchez, Laura Elisabeth
    Fernadez Ezquerra, Sonia
    Cisneros Fernandez, Patricia
    [J]. REVISTA ESPANOLA DE DISCAPACIDAD-REDIS, 2015, 3 (01): : 93 - 105
  • [2] Quality of life for people with intellectual disabilities
    Bertelli, Marco
    Brown, Ivan
    [J]. CURRENT OPINION IN PSYCHIATRY, 2006, 19 (05) : 508 - 513
  • [3] QUALITY OF LIFE AND QUALITY OF SUPPORT OF ELDERLY PEOPLE WITH PROFOUND INTELLECTUAL AND MULTIPLE DISABILITIES
    Schepens, H.
    Maes, B.
    [J]. JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, 2019, 63 (07) : 834 - 834
  • [4] Application and Validation of the PRECEDE Model for Measuring the Quality of Life of the People with Physical Disabilities
    Won, Youngin
    Han, Sujeong
    [J]. JOURNAL OF MENS HEALTH, 2022, 18 (06)
  • [5] Friendship, Quality of Life, and People with Intellectual and Developmental Disabilities
    Friedman, Carli
    Rizzolo, Mary C.
    [J]. JOURNAL OF DEVELOPMENTAL AND PHYSICAL DISABILITIES, 2018, 30 (01) : 39 - 54
  • [6] Quality of life in people with intellectual and developmental disabilities COMMENT
    Gomez, Laura E.
    [J]. DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY, 2022, 64 (09): : 1056 - 1057
  • [7] Quality of life assessments for ageing people with intellectual disabilities
    Suemitsu, S
    Sasano, K
    Kikuchi, T
    Egusa, Y
    [J]. JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, 2000, 44 : 479 - 479
  • [8] Friendship, Quality of Life, and People with Intellectual and Developmental Disabilities
    Carli Friedman
    Mary C. Rizzolo
    [J]. Journal of Developmental and Physical Disabilities, 2018, 30 : 39 - 54
  • [9] Choice as an Aspect of Quality of Life for People With Intellectual Disabilities
    Brown, Ivan
    Brown, Roy I.
    [J]. JOURNAL OF POLICY AND PRACTICE IN INTELLECTUAL DISABILITIES, 2009, 6 (01) : 11 - 18
  • [10] Family Quality of Life for People With Intellectual Disabilities in Catalonia
    Gine, Climent
    Gracia, Marta
    Vilaseca, Rosa
    Salvador Beltran, Francesc
    Balcells-Balcells, Anna
    Dalmau Montala, Mariona
    Luisa Adam-Alcocer, Ana
    Teresa Pro, Maria
    Simo-Pinatella, David
    Mas Mestre, Joana Maria
    [J]. JOURNAL OF POLICY AND PRACTICE IN INTELLECTUAL DISABILITIES, 2015, 12 (04) : 244 - 254