"Good-Parent Beliefs": Research, Concept, and Clinical Practice

被引:64
|
作者
Weaver, Meaghann S. [1 ]
October, Tessie [2 ,3 ]
Feudtner, Chris [4 ,5 ,6 ]
Hinds, Pamela S. [3 ,7 ]
机构
[1] Childrens Hosp & Med Ctr, Div Pediat Palliat Care, Omaha, NE 68114 USA
[2] Childrens Natl Med Ctr, Dept Crit Care Med, Washington, DC 20010 USA
[3] George Washington Univ, Sch Med, Dept Pediat, Washington, DC 20052 USA
[4] Childrens Hosp Philadelphia, Dept Med Eth, Philadelphia, PA 19104 USA
[5] Childrens Hosp Philadelphia, Pediat Adv Care Team, Philadelphia, PA 19104 USA
[6] Univ Penn, Dept Pediat, Perelman Sch Med, Philadelphia, PA 19104 USA
[7] Childrens Natl Hlth Syst, Dept Nursing Sci Profess Practice & Qual, Washington, DC USA
基金
美国国家卫生研究院;
关键词
CHILD; CARE; DEATH;
D O I
10.1542/peds.2019-4018
中图分类号
R72 [儿科学];
学科分类号
100202 ;
摘要
In this article, we report on the development of the good-parent beliefs concept and describe the ways good-parent beliefs may guide family decision-making and influence family relationships. Parents of ill children have willingly identified their personal beliefs about what they should do or focus on to fulfill their own internal definition of being a good parent for their child. This observation has led to the development of the good-parent beliefs concept over the past decade. A growing qualitative, quantitative, and mixed-methods research base has explored the ways that good-parent beliefs guide family decision-making and influence family relationships. Parents have expressed comfort in speaking about their good-parent beliefs. Whether parents achieve their unique good-parent beliefs definition affects their sense of whether they did a good job in their role of parenting their ill child. In this state-of-the-art article, we offer an overview of the good-parent beliefs concept over the past decade, addressing what is currently known and gaps in what we know, and explore how clinicians may incorporate discussions about the good-parent beliefs into clinical practice.
引用
收藏
页数:7
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