OPTIMIZING SCLERODERMA CENTERS OF EXCELLENCE: PERSPECTIVES FROM PATIENTS AND SYSTEMIC SCLEROSIS (SSC) EXPERTS

被引:0
|
作者
Jaeger, V. [1 ]
Aubin, A. [2 ]
Baldwin, N. [3 ]
Fligelstone, K. [4 ,5 ]
Sims, R. [6 ]
Welling, J. [7 ]
Burrill, R. [8 ]
Connolly, K. [8 ]
Gordon, J. K. [9 ]
Frech, T. [10 ]
Ngcozana, T. [11 ]
Kowalczyk, M. [12 ]
Lammi, M. R. [13 ]
Lasky, J. A. [14 ]
Walker, U. A. [1 ]
Saketkoo, L. A. [14 ,15 ]
机构
[1] Univ Basel, Dept Rheuamtol, Basel, Switzerland
[2] LSU Hlth Sci Ctr, New Orleans, LA USA
[3] Scleroderma Fdn Chicago, Chicago, IL USA
[4] Scleroderma Soc UK, London, England
[5] Royal Free Hosp, Scleroderma Unit, London, England
[6] Scleroderma Australia, Melbourne, Vic, Australia
[7] Org Syst Autoimmune Dis, Utrecht, Netherlands
[8] Scleroderma Fdn, Danvers, MA USA
[9] Hosp Special Surg, New York, NY 10021 USA
[10] Univ Utah, Salt Lake City, UT USA
[11] Royal Free Hosp, London, England
[12] Tulane Univ, New Orleans, LA 70118 USA
[13] LSU Hlth Sci Ctr, Pulm Med, New Orleans, LA USA
[14] UMC Scleroderma & Sarcoidosis Patient Care & Res, Tulane Lung Ctr, New Orleans, LA USA
[15] Tulane Univ, UMC Scleroderma & Sarcoidosis Patient Care & Res, New Orleans, LA 70118 USA
关键词
D O I
10.1136/annrheumdis-2015-eular.2528
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
AB0711
引用
收藏
页码:1135 / 1136
页数:2
相关论文
共 50 条
  • [1] Optimizing Scleroderma Centers of Excellence: Perspectives from Patients and Scleroderma (SSc) Experts
    Jaeger, Veronika K.
    Aubin, Andrew
    Baldwin, Nancy
    Fligelstone, Kim
    Sims, Robyn
    Welling, Joep
    Burrill, Ryan
    Connolly, Kerri
    Frech, Tracy
    Gordon, Jessica K.
    Ngcozana, Tanaka
    Kowalczyk, Monika
    Lammi, Matthew R.
    Walker, Ulrich A.
    Saketkoo, Lesley Ann
    ARTHRITIS & RHEUMATOLOGY, 2014, 66 : S1180 - S1181
  • [2] THE PATHOGENESIS OF SCLERODERMA (SYSTEMIC-SCLEROSIS, SSC)
    LEROY, EC
    TROJANOWSKA, M
    SMITH, EA
    CLINICAL AND EXPERIMENTAL RHEUMATOLOGY, 1991, 9 (02) : 173 - 177
  • [3] Informatics can identify systemic sclerosis (SSc) patients at risk for scleroderma renal crisis
    Redd, Doug
    Frech, Tracy M.
    Murtaugh, Maureen A.
    Rhiannon, Julia
    Zeng, Qing T.
    COMPUTERS IN BIOLOGY AND MEDICINE, 2014, 53 : 203 - 205
  • [4] GM genes associated with anticentromere antibody in Japanese patients with systemic sclerosis (Scleroderma, SSc).
    Pandey, JP
    Kameda, H
    Kuwana, M
    JOURNAL OF ALLERGY AND CLINICAL IMMUNOLOGY, 1997, 99 (01) : 904 - 904
  • [5] Comparison of estimated Glomerular Filtration Rate (eGFR) and actual GFR in patients with systemic sclerosis (scleroderma, SSc)
    Schiopu, Elena
    Gadebeku, Crystal A.
    Rollins, Kristan
    Wade, Michael
    Seibold, James R.
    Phillips, Kristine
    CLINICAL AND EXPERIMENTAL RHEUMATOLOGY, 2010, 28 (05) : S75 - S75
  • [6] Differences in presentation of young and older systemic scleroderma (ssc) patients in Ssc trials.
    Weng, Haoling H.
    Ranganath, Veena K.
    Oh, MyungShin
    Park, Grace
    Khanna, Dinesh
    Clements, Philip J.
    Setoodeh, Katy
    Seibold, James R.
    Furst, Daniel E.
    ARTHRITIS AND RHEUMATISM, 2006, 54 (09): : S738 - S738
  • [7] SARCOIDOSIS IN PATIENTS WITH SYSTEMIC-SCLEROSIS (SSC)
    COX, D
    CONANT, E
    NEWMAN, J
    JIMENEZ, S
    VARGA, J
    ARTHRITIS AND RHEUMATISM, 1994, 37 (06): : R39 - R39
  • [8] Predictors of the scleroderma phenotype in fibroblasts from systemic sclerosis patients
    Qi, Q.
    Guo, Q.
    Tan, G.
    Mao, Y.
    Tang, H.
    Zhou, C.
    Zeng, F.
    JOURNAL OF THE EUROPEAN ACADEMY OF DERMATOLOGY AND VENEREOLOGY, 2009, 23 (02) : 160 - 168
  • [9] Sequencing of the fibrillin-1 gene in Native Americans with scleroderma (systemic sclerosis or SSc).
    Tan, FK
    Le, JT
    Milewicz, D
    Amett, FC
    ARTHRITIS AND RHEUMATISM, 1998, 41 (09): : S103 - S103
  • [10] HLA Class II associations in systemic sclerosis (SSc) from the scleroderma family registry and DNA repository.
    Mayes, MD
    Ahn, CW
    Arnett, FC
    Charles, J
    Reveille, JD
    ARTHRITIS AND RHEUMATISM, 2005, 52 (09): : S582 - S583