Exploring the role of psychosocial care in value-based oncology: Results from a survey of 3000 cancer patients and survivors

被引:15
|
作者
Doherty, Meredith [1 ]
Miller-Sonet, Ellen [2 ]
Gardner, Daniel [3 ]
Epstein, Irwin [3 ]
机构
[1] CUNY, Grad Ctr, New York, NY USA
[2] CancerCare, New York, NY USA
[3] CUNY Hunter Coll, Silberman Sch Social Work, New York, NY 10021 USA
关键词
cancer; financial hardship; informational needs; patient navigation; psychosocial care; survivorship; value-based care; QUALITY-OF-LIFE; HEALTH; INTERVENTION; METAANALYSIS; COST; FRAMEWORK; PATHWAYS; NEEDS;
D O I
10.1080/07347332.2018.1504851
中图分类号
B84 [心理学];
学科分类号
04 ; 0402 ;
摘要
Purpose: To explore the psychosocial needs of cancer patients and survivors across the United States and their implications for value-based oncology. Design: A secondary analysis of findings from a cross-sectional national online survey. Sample: Respondents were sampled and stratified by cancer type and geographic region to approximate the cancer-affected population of the United States. Breast, prostate, and colorectal were the most common cancers reported. Across surveys, the majority of respondents were female (57%), over 55 (60%), and white (70%) and had at least some college (36%). Methods: Six online surveys were administered to cohorts of approximately 500 unique cancer patients and survivors. Survey topics included: (1) diagnosis, (2) treatment planning, (3) communication with providers, (4) insurance and financial concerns, (5) quality of life, side effects, and symptoms, and (6) survivorship and end-of-life. Descriptive analyses were used to explore psychosocial needs and experiences across three domains of patient-centered value in oncology. Findings: Each survey received 500-527 responses. Respondents most commonly reported needing more information regarding their insurance coverage and out-of-pocket costs (65%), access to clinical trials (89%), and support organizations (45%). Forty-one percent were very or extremely distressed about cancer's impact on their ability to work and over 25% reported high-levels of cancer-related financial hardship. Conclusions: Patients and survivors reported significant unmet informational needs, financial hardship, distress, and symptoms or treatment side effects that interfered with daily life.
引用
收藏
页码:441 / 455
页数:15
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