Ethical Challenges in Contemporary FASD Research and Practice A Global Health Perspective

被引:0
|
作者
Di Pietro, Nina [1 ]
De Vries, Jantina [2 ,3 ]
Paolozza, Angelina [4 ]
Reid, Dorothy [5 ]
Reynolds, James N. [6 ,7 ]
Salmon, Amy [8 ,9 ]
Wilson, Marsha [10 ]
Stein, Dan J. [11 ,12 ]
Illes, Judy [13 ,14 ,15 ]
机构
[1] Douglas Coll, Dept Psychol, Fac Humanities & Social Sci, New Westminster, BC, Canada
[2] Univ Cape Town, Dept Med, Cape Town, South Africa
[3] H3Afr Working Grp Eth & Regulatory Issues, Cape Town, South Africa
[4] Univ Toronto, Lab Infant Studies, Scarborough Campus, Toronto, ON, Canada
[5] CanFASD Res Network, Family Advisory Comm, Abbotsford, BC, Canada
[6] Queens Univ, Dept Biomed & Mol Sci, Kingston, ON K7L 3N6, Canada
[7] Queens Univ, Ctr Neurosci Studies, Kingston, ON K7L 3N6, Canada
[8] Univ Alberta, Dept Psychiat, Edmonton, AB T6G 2M7, Canada
[9] Univ British Columbia, Sch Populat & Publ Hlth, Vancouver, BC, Canada
[10] Douglas Coll, Fac Child Family & Community Studies, New Westminster, BC, Canada
[11] Univ Cape Town, Dept Psychiat & Mental Hlth, Cape Town, South Africa
[12] UCT Dept Psychiat, Groote Schuur Hosp, MRC, Unit Anxiety & Stress Disorders, Cape Town, South Africa
[13] Univ British Columbia, Neurol, Canada Res Chair Neuroeth, Vancouver, BC V5Z 1M9, Canada
[14] Univ British Columbia, Natl Core Neuroeth, Vancouver, BC V5Z 1M9, Canada
[15] Int Neuroeth Soc, Bethesda, MD USA
基金
英国医学研究理事会;
关键词
fetal alcohol spectrum disorder (FASD); clinical neuroethics; global public health; SOUTH-AFRICA; ALCOHOL;
D O I
10.1017/S096318011600044X
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Fetal alcohol spectrum disorder (FASD) is increasingly recognized as a growing public health issue worldwide. Although more research is needed on both the diagnosis and treatment of FASD, and a broader and more culturally diverse range of services are needed to support those who suffer from FASD and their families, both research and practice for FASD raise significant ethical issues. In response, from the point of view of both research and clinical neuroethics, we provide a framework that emphasizes the need to maximize benefits and minimize harm, promote justice, and foster respect for persons within a global context.
引用
收藏
页码:726 / 732
页数:7
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