Self-reported health in parents of boys with sex chromosome aneuploidies

被引：1
|
作者：
Fjermestad, Krister W. [1 ,2 ]
Runsjo, Fredrik [1 ]
Stokke, Simen [2 ]
机构：
[1] Univ Oslo, Dept Psychol, Oslo, Norway
[2] Frambu Resource Ctr Rare Disorders, Siggerud, Norway
来源：
CHILDRENS HEALTH CARE | 2018年 / 47卷 / 02期
关键词：
QUALITY-OF-LIFE; KLINEFELTER SYNDROME; CHRONIC ILLNESS; DIFFICULTIES QUESTIONNAIRE; GENDER-DIFFERENCES; SWEDISH PARENTS; COMPLAINTS SHC; DOWNS-SYNDROME; CHILDREN; STRESS;
D O I：
10.1080/02739615.2017.1318388
中图分类号：
R1 [预防医学、卫生学];
学科分类号：
1004 ; 120402 ;
摘要：
Parents of boys with sex chromosome aneuploidies (SCA) were examined. Parents (22 mothers; 16 fathers) of 25 boys aged 2-18years (M=11.7, SD=4.5) with SCA self-reported the Subjective Health Complaints Inventory (SHC), the Pittsburgh Sleep Quality Index, and the Personal Wellbeing Index. Parents reported more SHC and poorer daytime functioning than norms. Mothers reported more SHC, poorer sleep and daytime functioning, and lower health satisfaction than fathers. Parent-reported socio-emotional problems for sons (Strengths and Difficulties Questionnaire) significantly overlapped with parental sleep disturbance. Parental health should be considered in medical consultations involving families of boys with SCA.
引用
收藏
页码：150 / 164
页数：15
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