Everyday Life for Women With Celiac Disease

被引:10
|
作者
Roos, Susanne [1 ]
Hellstrom, Ingrid [1 ]
Hallert, Claes [1 ,2 ]
Wilhelmsson, Susan [3 ]
机构
[1] Linkoping Univ, Dept Social & Welf Studies, S-60174 Norrkoping, Sweden
[2] Norrkoping Hosp, Coeliac Ctr, Norrkoping, Sweden
[3] Linkoping Univ, Cty Council Ostergotland, R&D Unit Local Hlth Care, S-60174 Norrkoping, Sweden
关键词
QUALITY-OF-LIFE; CHRONIC ILLNESS; ADULTS;
D O I
10.1097/SGA.0b013e31829ed98d
中图分类号
R57 [消化系及腹部疾病];
学科分类号
摘要
The aim of this research was to explore how women with celiac disease experience everyday life. It is important that healthcare professionals understand what it is like to live with a chronic illness, and also the factors that affect the lives of women who have celiac disease. The study has a qualitative approach and the data were collected using interviews with 16 women. A conventional content analysis was used for the subjective interpretation of the qualitative interviews. Three main themes emerged in the analysis: illness trajectory and treatment, socializing with others, and feelings of loneliness and worry. The findings indicate that living with celiac disease affects the person's entire life from the past, in the present, and into the future, especially when daily routines must be altered. The women expressed a sense of loneliness and invisibility, especially when socializing with others. The diet could be a friend, enemy, obstacle, or opportunity in terms of enjoying a good life. Supporting women diagnosed with celiac disease appears to be a major task for healthcare professionals. Such professionals need to pay attention to women's symptoms, worries, and their feeling of being invisible.
引用
收藏
页码:266 / 273
页数:8
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