Martial Arts Training for Boys With Duchenne Muscular Dystrophy

被引:1
|
作者
Stessel, Maarten K. N. [1 ]
de Groot, Imelda J. M. [1 ]
Janssen, Mariska M. H. P. [1 ]
机构
[1] Radboud Univ Nijmegen Med Ctr, Donders Ctr Neurosci, Dept Rehabil, Nijmegen, Gelderland, Netherlands
关键词
physical activity; resilience; self-confidence; QUALITY-OF-LIFE; DIFFICULTIES QUESTIONNAIRE; DUTCH VERSION; CHILDREN; MANAGEMENT; STRENGTHS; ADULTS; TRIAL;
D O I
10.1123/pes.2021-0117
中图分类号
R72 [儿科学];
学科分类号
100202 ;
摘要
Purpose: The primary aim of this pilot study was to investigate the safety and feasibility of a 3-month martial arts-based training (MAT) program for patients with Duchenne muscular dystrophy (DMD). The secondary aim was to examine changes in physical and psychosocial abilities after participating in the MAT program. Methods: Twelve patients with DMD (10 ambulant and 2 nonambulant) were included. The MAT program was evaluated on feasibility and safety. Changes in physical abilities were measured using the Motor Function Measure, Performance of Upper Limb scale, and the North Star Ambulatory Assessment. Changes in psychosocial abilities were measured using the Strength and Difficulties Questionnaire, Personal Adjustment and Role Skills for DMD, and the Self-Perception Profile for Children/Adolescents. Results: Two participants did not complete the MAT program. Attendance rate for the 10 remaining participants was 91%. Eleven falls were reported during the training, but these falls did not result in injuries. Therefore, the MAT program was found feasible and safe. After completing the MAT program, most participants showed an improvement of their psychosocial abilities, and their physical abilities did not show deterioration. Conclusion: The MAT program is feasible and safe for boys with DMD.
引用
收藏
页码:185 / 192
页数:8
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