Sexuality in Adults with Differences/Disorders of Sex Development (DSD): Findings from the dsd-LIFE Study

被引:21
|
作者
Kreukels, Baudewijntje P. C. [1 ]
Cohen-Kettenis, Peggy T. [1 ]
Roehl, Robert [2 ]
van de Grift, Tim C. [1 ,3 ]
Slowikowska-Hilczer, Jolanta [4 ]
Claahsen-van der Grinten, Hedi [5 ]
Hirschberg, Angelica Linden [6 ,7 ]
de Vries, Annelou L. C. [8 ]
Reisch, Nicole [9 ]
Bouvattier, Claire [10 ]
Nordenstrom, Anna [7 ]
Thyen, Ute [11 ]
Koehler, Birgit [12 ]
Cohen-Kettenis, Peggy
de Vries, Annelou
Arlt, Wiebke
Wiesemann, Claudia
de la Perriere, Aude Brac
Sultan, Charles
Paris, Francoise
Richter-Unruh, Annette
Pienkowski, Catherine
Szarras-Czapnik, Maria
机构
[1] Vrije Univ Amsterdam, Amsterdam UMC, Med Psychol, Amsterdam, Netherlands
[2] Charite Univ Med Berlin, KKS Charite, Koordinierungszentrum Klin Studien, Berlin, Germany
[3] Vrije Univ Amsterdam, Amsterdam UMC, Plast Reconstructieve Handchirurg, Amsterdam, Netherlands
[4] Med Univ Lodz, Dept Androl & Reprod Endocrinol, Lodz, Poland
[5] Radboud Univ Nijmegen, Dept Pediat Endocrine Dis, Med Ctr, Nijmegen, Netherlands
[6] Karolinska Univ Hosp, Dept Gynaecol & Reprod Med, Stockholm, Sweden
[7] Karolinska Inst, Dept Womens & Childrens Hlth, Stockholm, Sweden
[8] Vrije Univ Amsterdam, Amsterdam UMC, Kinderpsychiat, Amsterdam, Netherlands
[9] Univ Hosp Munich, Dept Endocrinol, Munich, Germany
[10] Paris Sud Univ, Dept Pediat Endocrinol, Hop Bicetre, AP HP, Le Kremlin Bicetre, France
[11] Univ Lubeck, Klin Kinder & Jugendmed, Lubeck, Germany
[12] Charite Univ Med Berlin, Klin Padiatrie Schwerpunkt Endokrinol & Diabetol, Berlin, Germany
关键词
QUALITY-OF-LIFE; CONGENITAL ADRENAL-HYPERPLASIA; BODY-IMAGE; INTERSEX CONDITIONS; TURNER-SYNDROME; WOMEN; DISORDERS; SATISFACTION; INDIVIDUALS; MEN;
D O I
10.1080/0092623X.2019.1610123
中图分类号
B849 [应用心理学];
学科分类号
040203 ;
摘要
For various reasons, sexuality of individuals with differences/disorders of sex development (DSD) may be affected. The aim of the study was to describe sexual activity, satisfaction with sex life, satisfaction with genital function, and sexual problems in people with different DSD conditions. Data were collected from 1,040 participants in Europe. Many people with a variety of DSD conditions do not appear to be satisfied with their sex life, experience a variety of sexual problems, and are less sexually active than the general population; therefore sexuality should be explicitly addressed in the care of people with DSD.
引用
收藏
页码:688 / 705
页数:18
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