Making sense of big data in health research: towards an EU action plan (vol 8, pg 71, 2016)

被引：0

作者：

Auffray, Charles ^{[1
,2
]}

Balling, Rudi ^{[3
]}

Barroso, Ines ^{[4
]}

Bencze, Laszlo ^{[5
]}

Benson, Mikael ^{[6
]}

Bergeron, Jay ^{[7
]}

Bernal-Delgado, Enrique ^{[8
]}

Blomberg, Niklas ^{[9
]}

Bock, Christoph ^{[10
,11
,12
]}

Conesa, Ana ^{[13
,14
]}

Del Signore, Susanna ^{[15
]}

Delogne, Christophe ^{[16
]}

Devilee, Peter ^{[17
]}

Di Meglio, Alberto ^{[18
]}

Eijkemans, Marinus ^{[19
]}

Flicek, Paul ^{[20
]}

Graf, Norbert ^{[21
]}

Grimm, Vera ^{[22
]}

Guchelaar, Henk-Jan ^{[23
]}

Guo, Yi-Ke ^{[24
]}

Gut, Ivo Glynne ^{[25
]}

Hanbury, Allan ^{[26
]}

Hanif, Shahid ^{[27
]}

Hilgers, Ralf-Dieter ^{[28
]}

Honrado, Angel ^{[29
]}

Hose, D. Rod ^{[30
,31
]}

Houwing-Duistermaat, Jeanine ^{[32
]}

Hubbard, Tim ^{[33
,34
]}

Janacek, Sophie Helen ^{[20
]}

Karanikas, Haralampos ^{[35
]}

Kievits, Tim ^{[36
]}

Kohler, Manfred ^{[37
]}

Kremer, Andreas ^{[38
]}

Lanfear, Jerry ^{[39
]}

Lengauer, Thomas ^{[12
]}

Maes, Edith ^{[40
]}

Meert, Theo ^{[41
]}

Muller, Werner ^{[42
]}

Nickel, Dothe ^{[43
]}

Oledzki, Peter ^{[44
]}

Pedersen, Bertrand ^{[45
]}

Petkovic, Milan ^{[46
]}

Pliakos, Konstantinos ^{[47
]}

Rattray, Magnus ^{[42
]}

Redon i Mas, Josep ^{[48
]}

Schneider, Reinhard ^{[3
]}

Sengstag, Thierry ^{[49
,50
]}

Serra-Picamal, Xavier ^{[51
]}

Spek, Wouter ^{[52
]}

Vaas, Lea A. I. ^{[37
]}

机构：

[1] European Inst Syst Biol & Med, 1 Ave Claude Vellefaux, F-75010 Paris, France

[2] Univ Lyon, CNRS ENS INSERM UCBL, CIRI UMR5308, 50 Ave Tony Garnier, F-69007 Lyon, France

[3] Univ Luxembourg, Luxembourg Ctr Syst Biomed, 7 Ave Hauts Fourneaux, L-4362 Esch Sur Alzette, Luxembourg

[4] Wellcome Trust Sanger Inst, Wellcome Genome Campus, Cambridge CB10 15A, England

[5] Semmelweis Univ, Fac Hlth & Publ Serv, Hlth Serv Management Training Ctr, Kutvolgyi Ut 2, H-1125 Budapest, Hungary

[6] Linkoping Univ, Ctr Personalised Med, S-58185 Linkoping, Sweden

[7] Pfizer Inc, Translat & Bioinformat, 300 Technol Sq, Cambridge, MA 02139 USA

[8] IACS IIS Aragon, Inst Hlth Sci, San Juan Bosco 13, Zaragoza 50009, Spain

[9] ELIXIR, Wellcome Genome Campus, Cambridge CB10 1SD, England

[10] Austrian Acad Sci, CeMM Res Ctr Mol Med, Lazarettgasse 14,AKH BT25-2, A-1090 Vienna, Austria

[11] Austrian Acad Sci, Dept Lab Med, Lazarettgasse 14,AKH BT25-2, A-1090 Vienna, Austria

[12] Max Planck Inst Informat, Campus E1 4, D-66123 Saarbrucken, Germany

[13] Principe Felipe Res Ctr, C Eduardo Primo Yufera 3, Valencia 46012, Spain

[14] Univ Florida, IFAS, 2033 Mowry Rd, Gainesville, FL 32610 USA

[15] Bluecompan Ltd, 6 London St,Second Floor, London W2 1HR, England

[16] KPMG Luxembourg, Soc Cooperat, Technol Data & Analyt, 39 Ave John F Kennedy, L-1855 Luxembourg, Luxembourg

[17] Leiden Univ, Med Ctr, Dept Pathol, Dept Human Genet, Einthovenweg 20, NL-2333 ZC Leiden, Netherlands

[18] European Org Nucl Res, CERN, Dept Informat Technol, 385 Route Meyrin, CH-1211 Geneva 23, Switzerland

[19] Univ Med Ctr Utrecht, Julius Ctr Hlth Sci & Primary Care, Heidelberglaan 100, NL-3508 GA Utrecht, Netherlands

[20] EMBL EBI, Wellcome Genome Campus, Cambridge CB10 1SD, England

[21] Univ Saarland, Dept Pediat Oncol Hematol, Campus Homburg,Bldg 9, D-66421 Homburg, Germany

[22] Forschungszentrum Julich, Project Management Julich, Wilhelm Johnen Str, D-52428 Julich, Germany

[23] Leiden Univ, Dept Clin Pharm & Toxicol, Med Ctr, Albinusdreef 2, NL-2333 ZA Leiden, Netherlands

[24] Imperial Coll London, Data Sci Inst, London SW7 2AZ, England

[25] BIST, CNAG CRG, Ctr Genom Regulat, C Baldiri Reixac 4, Barcelona 08029, Spain

[26] TU Wien, Inst Software Technol & Interact Syst, Favoritenstr 9-11-188, A-1040 Vienna, Austria

[27] Assoc British Pharmaceut Ind, 7th Floor,105 Victoria St, London SW1E 6QT, England

[28] Rhein Westfal TH Aachen, Univ Klinikum Aachen, Dept Med Stat, Pauwelsstr 30, D-52074 Aachen, Germany

[29] SYNAPSE Res Management Partners, Diputacio 237,Atic 3a, Barcelona 08007, Spain

[30] Univ Sheffield, Sch Med, Dept Infect Immun & Cardiovasc Dis, Beech Hill Rd, Sheffield S10 2RX, S Yorkshire, England

[31] Univ Sheffield, Sch Med, Insigneo Inst Insilico Med, Beech Hill Rd, Sheffield S10 2RX, S Yorkshire, England

[32] Univ Leeds, Sch Math, Dept Stat, Leeds LS2 9JT, W Yorkshire, England

[33] Kings Coll London, Dept Med & Mol Genet, London SE1 9RT, England

[34] Genom England, London EC1M 6BQ, England

[35] Univ Athens, Sch Med, Xristou Lada 6, Athens 10561, Greece

[36] Vitromics Healthcare Holding BV, Onderwijsboulevard 225, NL-5223 DE sHertogenbosch, Netherlands

[37] Fraunhofer Inst Mol Biol & Appl Ecol ScreeningPor, Schnackenburgallee 114, D-22525 Hamburg, Germany

[38] ITTM SA, 9 Ave Hauts Fourneaux, L-4362 Esch Sur Alzette, Luxembourg

[39] Pfizer Ltd, Res Business Technol, GP4 Bldg,Granta Pk, Cambridge CB21 6GP, England

[40] Deloitte Belgium, Hlth Econ & Outcomes Res, Berkenlaan 8A, B-1831 Diegem, Belgium

[41] Janssen Pharmaceut NV, R&D G3O, Turnhoutseweg 30, B-2340 Beerse, Belgium

[42] Univ Manchester, Fac Life Sci, AV Hill Bldg,Oxford Rd, Oxford M13 9PT, England

[43] Inst Curie, UMR3664 IC CNRS, Sect Rech, Pavillon Pasteur,26 Rue Ulm, F-75248 Paris 05, France

[44] Linguamat Ltd, 324 Cambridge Sci Pk Milton Rd, Cambridge CB4 0WG, England

[45] PwC Luxembourg, 2 Rue Gerhard Mercator, L-2182 Luxembourg, Luxembourg

[46] Philips, HighTechCampus 36, NL-5656 AE Eindhoven, Netherlands

[47] KU Leuven Kulak, Dept Publ Hlth & Primary Care, Etienne Sabbelaan 53, B-8500 Kortrijk, Belgium

[48] Univ Valencia, INCLIVA Hlth Res Inst, CIBERobn ISCIII, Ave Menendez Pelayo 4 Accesorio, Valencia 46010, Spain

[49] SIB, Klingelbergstr 50-70, CH-4056 Basel, Switzerland

[50] Univ Basel, Klingelbergstr 50-70, CH-4056 Basel, Switzerland

来源：

GENOME MEDICINE | 2016年 / 8卷

关键词：

D O I：

10.1186/s13073-016-0376-y

中图分类号：

Q3 [遗传学];

学科分类号：

071007 ; 090102 ;

摘要：

引用

页数：2

共 12 条

[1] Making sense of big data in health research: Towards an EU action plan
Auffray, Charles
Balling, Rudi
Barroso, Ines
Bencze, Laszlo
Benson, Mikael
Bergeron, Jay
Bernal-Delgado, Enrique
Blomberg, Niklas
Bock, Christoph
Conesa, Ana
Del Signore, Susanna
Delogne, Christophe
Devilee, Peter
Di Meglio, Alberto
Eijkemans, Marinus
Flicek, Paul
Graf, Norbert
Grimm, Vera
Guchelaar, Henk-Jan
Guo, Yi-Ke
Gut, Ivo Glynne
Hanbury, Allan
Hanif, Shahid
Hilgers, Ralf-Dieter
Honrado, Angel
Hose, D. Rod
Houwing-Duistermaat, Jeanine
Hubbard, Tim
Janacek, Sophie Helen
Karanikas, Haralampos
Kievits, Tim
Kohler, Manfred
Kremer, Andreas
Lanfear, Jerry
Lengauer, Thomas
Maes, Edith
Meert, Theo
Mueller, Werner
Nickel, Dorthe
Oledzki, Peter
Pedersen, Bertrand
Petkovic, Milan
Pliakos, Konstantinos
Rattray, Magnus
Redon i Mas, Josep
Schneider, Reinhard
Sengstag, Thierry
Serra-Picamal, Xavier
Spek, Wouter
Vaas, Lea A. I.
[J]. GENOME MEDICINE, 2016, 8
[2] Making sense of big data in health research: Towards an EU action plan
Charles Auffray
Rudi Balling
Inês Barroso
László Bencze
Mikael Benson
Jay Bergeron
Enrique Bernal-Delgado
Niklas Blomberg
Christoph Bock
Ana Conesa
Susanna Del Signore
Christophe Delogne
Peter Devilee
Alberto Di Meglio
Marinus Eijkemans
Paul Flicek
Norbert Graf
Vera Grimm
Henk-Jan Guchelaar
Yi-Ke Guo
Ivo Glynne Gut
Allan Hanbury
Shahid Hanif
Ralf-Dieter Hilgers
Ángel Honrado
D. Rod Hose
Jeanine Houwing-Duistermaat
Tim Hubbard
Sophie Helen Janacek
Haralampos Karanikas
Tim Kievits
Manfred Kohler
Andreas Kremer
Jerry Lanfear
Thomas Lengauer
Edith Maes
Theo Meert
Werner Müller
Dörthe Nickel
Peter Oledzki
Bertrand Pedersen
Milan Petkovic
Konstantinos Pliakos
Magnus Rattray
Josep Redón i Màs
Reinhard Schneider
Thierry Sengstag
Xavier Serra-Picamal
Wouter Spek
Lea A. I. Vaas
[J]. Genome Medicine, 8
[3] Erratum to: Making sense of big data in health research: towards an EU action plan
Charles Auffray
Rudi Balling
Inês Barroso
László Bencze
Mikael Benson
Jay Bergeron
Enrique Bernal-Delgado
Niklas Blomberg
Christoph Bock
Ana Conesa
Susanna Del Signore
Christophe Delogne
Peter Devilee
Alberto Di Meglio
Marinus Eijkemans
Paul Flicek
Norbert Graf
Vera Grimm
Henk-Jan Guchelaar
Yi-Ke Guo
Ivo Glynne Gut
Allan Hanbury
Shahid Hanif
Ralf-Dieter Hilgers
Ángel Honrado
D. Rod Hose
Jeanine Houwing-Duistermaat
Tim Hubbard
Sophie Helen Janacek
Haralampos Karanikas
Tim Kievits
Manfred Kohler
Andreas Kremer
Jerry Lanfear
Thomas Lengauer
Edith Maes
Theo Meert
Werner Müller
Dörthe Nickel
Peter Oledzki
Bertrand Pedersen
Milan Petkovic
Konstantinos Pliakos
Magnus Rattray
Josep Redón i Màs
Reinhard Schneider
Thierry Sengstag
Xavier Serra-Picamal
Wouter Spek
Lea A. I. Vaas
[J]. Genome Medicine, 8
[4] Big Data in medical research and EU data protection law: challenges to the consent or anonymise approach (vol 24, pg 956, 2016)
Mostert, Menno
Bredenoord, Annelien L.
Biesaart, Monique C. I. H.
van Delden, Johannes J. M.
[J]. EUROPEAN JOURNAL OF HUMAN GENETICS, 2016, 24 (07) : 1096 - 1096
[5] Toward Data Sense-Making in Digital Health Communication Research: Why Theory Matters in the Age of Big Data
Lee, Edmund W. J.
Yee, Andrew Z. H.
[J]. FRONTIERS IN COMMUNICATION, 2020, 5
[6] A subcortical circuit for time and action: insights from animal research (vol 8, pg 147, 2016)
Doyere, Valerie
El Massioui, Nicole
[J]. CURRENT OPINION IN BEHAVIORAL SCIENCES, 2016, 8 : 289 - 289
[7] Making Sense of Large Scale Fertility Data [19N] (vol 127, pg 119S, 2016)
Tabor, V. Hogqvist
La Follette, Lizellen
[J]. OBSTETRICS AND GYNECOLOGY, 2016, 128 (02): : 411 - 411
[8] Enabling sense-making for patients receiving outpatient palliative treatment: A participatory action research driven model for person-centered communication (vol 14, pg 212, 2016)
Ohlen, J.
Carlsson, G.
Jepsen, A.
Lindberg, I.
Friberg, F.
[J]. PALLIATIVE & SUPPORTIVE CARE, 2016, 14 (05) : 595 - 595
[9] Factors Influencing Basic and Complementary Health Insurance Purchasing Decisions in Iran: Analysis of Data From a National Survey (vol 8, pg 179, 2016)
Nosratnejad, Shirin
Rashidian, Arash
Mehrara, Mohsen
Jafari, Nahid
Moeeni, Maryam
Babamohamadi, Hassan
[J]. WORLD MEDICAL & HEALTH POLICY, 2016, 8 (03): : 357 - 357
[10] Scraping the Web for Public Health Gains: Ethical Considerations from a 'Big Data' Research Project on HIV and Incarceration (vol 13, pg 111, 2020)
Rennie, Stuart
Buchbinder, Mara
Juengst, Eric
Brinkley-Rubinstein, Lauren
Blue, Colleen
Rosen, David L.
[J]. PUBLIC HEALTH ETHICS, 2020, 13 (03) : 314 - 314

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