Systemic vasculitis and patient-reported outcomes: how the assessment of patient preferences and perspectives could improve outcomes

被引：9

作者：

Robson, Joanna C. ^{[1
,2
]}

Jayne, David ^{[3
]}

Merkel, Peter A. ^{[4
,5
]}

Dawson, Jill ^{[6
]}

机构：

[1] Univ West England, Fac Hlth & Appl Sci, Bristol, Avon, England

[2] Univ Hosp Bristol NHS Trust, Fac Hlth & Appl Sci, Bristol, Avon, England

[3] Univ Cambridge, Dept Med, Cambridge, England

[4] Univ Penn, Dept Med, Div Rheumatol, Philadelphia, PA 19104 USA

[5] Univ Penn, Dept Biostat Epidemiol & Informat, Philadelphia, PA 19104 USA

[6] Univ Oxford, Nuffield Dept Populat Hlth HSRU, Oxford, England

来源：

PATIENT-RELATED OUTCOME MEASURES | 2019年 / 10卷

基金：

英国医学研究理事会;

关键词：

patient-related outcomes; vasculitis; ANCA-associated vasculitis; large-vessel vasculitis; Behcet's syndrome; clinical trials; QUALITY-OF-LIFE; LARGE-VESSEL VASCULITIS; ANCA-ASSOCIATED VASCULITIS; GIANT-CELL ARTERITIS; CLINICAL-TRIALS; RISK-FACTORS; CORE SET; BEHCETS-DISEASE; HEALTH; RITUXIMAB;

D O I：

10.2147/PROM.S163601

中图分类号：

R19 [保健组织与事业（卫生事业管理）];

学科分类号：

摘要：

The systemic vasculitides are a group of multisystem diseases, which can be life and organ threatening. High-dose immunosuppressants are required to control inflammation in vital organs, such as the kidneys, lungs, skin, joints, and eyes. Patients report a range of impacts on their health-related quality of life due to symptoms, irreversible damage, and the adverse effects of medications. The measurement of patient perspectives within clinical studies in vasculitis is essential to capture outcomes of greatest importance to patients. Validated generic, disease-specific and symptom-specific patient-reported outcomes available for use in patients with systemic vasculitis are reviewed here.

引用

页码：37 / 42

页数：6

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