'Our Stories ... ': Co-Constructing Digital Storytelling Methodologies for Supporting the Transitions of Autistic Children-Study Protocol ...

被引：4

作者：

Parsons, Sarah ^{[1
]}

Kovshoff, Hanna ^{[2
,3
]}

Yuill, Nicola ^{[4
,5
]}

Glass, Devyn ^{[4
,5
]}

Holt, Samantha ^{[4
,5
]}

Ward, Asha ^{[2
]}

Barron, Cleo ^{[2
]}

Ward, Rebecca ^{[2
,3
]}

机构：

[1] Univ Southampton, Southampton Educ Sch, Southampton SO17 1BJ, Hants, England

[2] Autism Community Res Network Southampton ACoRN So, Southampton, Hants, England

[3] Univ Southampton, Sch Psychol, Southampton, Hants, England

[4] Univ Sussex, Sch Psychol, Pevensey Bldg, Brighton, E Sussex, England

[5] Autism Community Res Network Sussex ACoRN Sussex, Brighton, E Sussex, England

来源：

INTERNATIONAL JOURNAL OF QUALITATIVE METHODS | 2023年 / 22卷

基金：

英国经济与社会研究理事会;

关键词：

digital storytelling; voice; knowledge co-construction; close-to-practice research; participatory research; autism; KNOWLEDGE; EXPERTISE; EDUCATION;

D O I：

10.1177/16094069221145286

中图分类号：

C [社会科学总论];

学科分类号：

03 ; 0303 ;

摘要：

The voices of autistic children and their families are routinely underestimated and overlooked in research and practice. Research is challenged methodologically in accessing the views of autistic people who, by definition, are characterised by social and communication difficulties. Consequently, many voices remain unheard and experiences undocumented. This has important implications for the validity of research that is interested in improving the life experiences of marginalised groups since the representation of those experiences is partial and dominated by research perspectives that prioritise particular kinds of evidence. This situation matters because there remains a substantial gap between research and practice such that the longer-term outcomes for autistic people across social, educational and economic indices remain poor. We argue that research can only make an impact on practice if there is a genuine commitment to gathering and understanding these different sources of evidence in ways that connect research and practice from the start. This protocol describes a methodological project funded by the Economic and Social Research Council in the UK. The 'Our Stories' project applies and extends a participatory Digital Stories methodology to explore the research challenge of gathering a range of views from autistic children, families, and practice in authentic ways and at points of transition. Digital Stories is an accessible and inclusive methodology that supports the sharing of views and experiences in visual, video form. We describe the rationale for, and design, of the project across four pilot studies in different contexts as well as our approach to analysis and ethics. While our project focuses on autism, the knowledge we gain is applicable to research and practice much more widely and to any voices or groups who are marginalised from the traditional ways of doing research and to any contexts of practice.

引用

页数：10