Use of the Dermatology Life Quality Index suite of patient-reported outcome measures in skin-related neglected tropical diseases

被引:0
|
作者
Junejo, Muhammad H.
Wolfe, Isabella
Patel, Jaina
Duus, Emma
Oyebanji, Oluwatobiloba
Walker, Stephen L.
机构
[1] Department of Dermatology, The Royal London Hospital, London
[2] Barts and the London School of Medicine and Dentistry, Queen Mary University of London, London
[3] Department of Dermatology, University College London Hospitals Nhs Foundation Trust, London
[4] Hospital for Tropical Diseases, University College London Hospitals Nhs Foundation Trust, London
[5] Faculty of Infectious and Tropical Diseases, London School of Hygiene and Tropical Medicine, London
关键词
D O I
10.1093/bjd/ljad217
中图分类号
R75 [皮肤病学与性病学];
学科分类号
100206 ;
摘要
Skin-related neglected tropical diseases (NTDs) affect nearly 1 billion people worldwide, contributing to significant physical and psychological morbidity. The DLQI suite of patient-reported outcome measures is widely used to assess the impact of skin diseases on individuals' health-related quality of life (HRQoL), but it has not been validated for use in skin-related NTDs. The new strategic framework for the control of skin-related NTDs identified the socioeconomic and mental health impact of skin NTDs as research gaps to be addressed. Robust assessments of HRQoL will be an essential part of this research and will require validated appropriate tools, including the DLQI.
引用
收藏
页码:490 / 492
页数:3
相关论文
共 50 条
  • [31] Quality of life in persons with voice disorders: A review of patient-reported outcome measures
    Slavych, Bonnie
    Engelhoven, Amy
    Zraick, Richard
    INTERNATIONAL JOURNAL OF THERAPY AND REHABILITATION, 2013, 20 (06): : 308 - 315
  • [32] A perspective on the use of patient-reported experience and patient-reported outcome measures in ambulatory healthcare
    Hays, Ron D.
    Quigley, Denise D.
    EXPERT REVIEW OF PHARMACOECONOMICS & OUTCOMES RESEARCH, 2025,
  • [34] Selecting patient-reported outcome measures of health-related quality of life in adult rheumatology: quality and breadth of coverage
    Erin Knight
    Karen E. Schifferdecker
    Guy S. Eakin
    Bryce B. Reeve
    Rheumatology International, 2023, 43 : 627 - 638
  • [35] Selecting patient-reported outcome measures of health-related quality of life in adult rheumatology: quality and breadth of coverage
    Knight, Erin
    Schifferdecker, Karen E.
    Eakin, Guy S.
    Reeve, Bryce B.
    RHEUMATOLOGY INTERNATIONAL, 2023, 43 (04) : 627 - 638
  • [36] Quality of life assessment using patient-reported outcome (PRO) measures: still a Cinderella outcome?
    Fallowfield, L. J.
    ANNALS OF ONCOLOGY, 2018, 29 (12) : 2286 - 2287
  • [37] Patient-Reported Outcome Measures in Neuromuscular Diseases: A Scoping Review
    Voet, Nicoline
    Pater, Ronne
    Garmendia, Joana
    Sistiaga, Andone
    Labayru, Garazi
    Gallais, Benjamin
    de Groot, Ingrid
    Muslemani, Samar
    Gagnon, Cynthia
    Graham, Christopher
    JOURNAL OF NEUROMUSCULAR DISEASES, 2024, 11 (03) : 567 - 577
  • [38] Utility of patient-reported outcome measures in nonmelanoma skin cancers
    Wali, G.
    Gibbons, E.
    Mackenzie, T.
    Perkins, W.
    Reed, J.
    Turner, R.
    Matin, R.
    BRITISH JOURNAL OF DERMATOLOGY, 2016, 175 : 211 - 211
  • [39] Exploring patient reported quality of life in lung cancer patients: A qualitative study of patient-reported outcome measures
    Jensen-Marini, Elena
    Ayton, Darshini
    Zalcberg, John
    Stirling, Robert G.
    ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, 2025, 21 (02) : 163 - 173
  • [40] The Use of Patient-Reported Outcome Measures in Rare Diseases and Implications for Health Technology Assessment
    Whittal, Amanda
    Meregaglia, Michela
    Nicod, Elena
    PATIENT-PATIENT CENTERED OUTCOMES RESEARCH, 2021, 14 (05): : 485 - 503