Preliminary Findings of an Active Multicomponent Lifestyle Intervention for People with Dementia and Their Carers: Mixed Methods Study

被引:2
|
作者
D'Cunha, Nathan M. [1 ,2 ]
Bennett, Michelle [1 ,3 ]
Mitterfellner, Rachael [1 ,3 ]
Brennan, Rosalie [3 ]
Wiseman, Lara [1 ,2 ]
Isbel, Stephen [1 ,2 ]
Bail, Kasia [2 ,4 ]
Barrett, Louise [3 ]
Rutherford, Kathleen [3 ]
Huang, Ian [1 ]
Gibson, Diane [2 ]
机构
[1] Univ Canberra, Fac Hlth, Sch Exercise & Rehabil Sci, Bruce, ACT 2617, Australia
[2] Univ Canberra, Fac Hlth, Ageing Res Grp, Bruce, ACT 2617, Australia
[3] Univ Canberra Hosp, Canberra Hlth Serv, Bruce, ACT 2617, Australia
[4] Univ Canberra, Fac Hlth, Sch Nursing Midwifery & Publ Hlth, Bruce, ACT 2617, Australia
关键词
QUALITY-OF-LIFE; FAMILY CARERS; SUPPORT;
D O I
10.1155/2023/5395080
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
There is a need for integrated and effective postdiagnostic rehabilitation programs for community-dwelling people with dementia and their carers to promote their quality of life and management of dementia. Here, we report on preliminary findings of the Sustainable Personalised Interventions for Cognition, Care, and Engagement (SPICE) Program conducted in Canberra, Australia. Over twelve weeks, six people with dementia and their carers completed five hours of weekly small group activities and separate individual appointments. SPICE is an active therapeutic intervention with five components delivered by allied health professionals: (1) cognitive stimulation therapy; (2) carer education, support, and capacity building; (3) physical activity; (4) Care Of People with dementia in their Environments (COPE) program; and (5) dietary assessment and advice. Participants completed questionnaires pre- and post-intervention and a program evaluation interview which was analysed by qualitative thematic analysis. The program demonstrated high program satisfaction ratings and program adherence (94% people with dementia and 92% carers) which supports intervention feasibility. The results of quantitative outcome measures suggest positive effects, but inferences cannot be drawn due to small sample size. Qualitative themes from participant experiences highlighted the following: (1) social connection, engagement, and interaction were key drivers of the success of the program; (2) clinicians fostered a positive and respectful culture; (3) carers were supported with strategies and skills to reframe dementia; and (4) reablement can be fun. The new combination of evidence-based interventions was feasible and considered valuable. Further results are required to confirm these findings and support a longer-term trial.
引用
收藏
页数:13
相关论文
共 50 条
  • [1] The impact of befriending and peer support on family carers of people living with dementia: A mixed methods study
    Smith, Raymond
    Drennan, Vari
    Mackenzie, Ann
    Greenwood, Nan
    [J]. ARCHIVES OF GERONTOLOGY AND GERIATRICS, 2018, 76 : 188 - 195
  • [2] SOCIAL HEALTH IN PEOPLE WITH DEMENTIA AND THEIR CARERS. PRELIMINARY FINDINGS FROM THE IDEAL PROGRAM
    Victor, Christina
    Rippon, Isla
    [J]. INNOVATION IN AGING, 2023, 7 : 434 - 434
  • [3] Practical and emotional preparation for death: A mixed methods study investigating experiences of family carers of people with dementia
    Fisher, Emily
    Crawley, Sophie
    Sampson, Elizabeth L.
    Cooper, Claudia
    Jones, Rebecca
    Anantapong, Kanthee
    [J]. DEMENTIA-INTERNATIONAL JOURNAL OF SOCIAL RESEARCH AND PRACTICE, 2022, 21 (03): : 934 - 956
  • [4] Family carers' experiences of attending a multicomponent psychosocial intervention program for carers and persons with dementia
    Johannessen, Aud
    Bruvik, Froydis Kristine
    Hauge, Solveig
    [J]. JOURNAL OF MULTIDISCIPLINARY HEALTHCARE, 2015, 8 : 91 - 98
  • [5] Experiences of end of life amongst family carers of people with advanced dementia: longitudinal cohort study with mixed methods
    Kirsten J Moore
    Sarah Davis
    Anna Gola
    Jane Harrington
    Nuriye Kupeli
    Victoria Vickerstaff
    Michael King
    Gerard Leavey
    Irwin Nazareth
    Louise Jones
    Elizabeth L. Sampson
    [J]. BMC Geriatrics, 17
  • [6] Experiences of end of life amongst family carers of people with advanced dementia: longitudinal cohort study with mixed methods
    Moore, Kirsten J.
    Davis, Sarah
    Gola, Anna
    Harrington, Jane
    Kupeli, Nuriye
    Vickerstaff, Victoria
    King, Michael
    Leavey, Gerard
    Nazareth, Irwin
    Jones, Louise
    Sampson, Elizabeth L.
    [J]. BMC GERIATRICS, 2017, 17
  • [7] Adaptation and feasibility of START online, a multicomponent intervention for Australian carers of people with dementia: a pilot randomised controlled trial
    Kelly, Michelle
    Kilham, Kaylene
    Walter, Alison
    Bell-Weinberg, Karen
    Livingston, Gill
    Dow, Briony
    [J]. BRAIN IMPAIRMENT, 2024, 25 (01)
  • [8] Evaluating the effects of a multicomponent support service for people recently diagnosed with dementia and their carers: A qualitative study
    Ling, Jonathan
    McCabe, Karen
    Crosland, Ann
    Kane, Laura
    Eberhardt, Judith
    [J]. HEALTH EXPECTATIONS, 2023, 26 (04) : 1628 - 1635
  • [9] Mindfulness-Based Intervention for People With Dementia and Their Partners: Results of a Mixed-Methods Study
    Berk, Lotte
    Warmenhoven, Franca
    Stiekema, Annemarie P. M.
    Van Oorsouw, Kim
    Van Os, Jim
    de Vugt, Marjolein
    Van Boxtel, Martin
    [J]. FRONTIERS IN AGING NEUROSCIENCE, 2019, 11
  • [10] Carers using assistive technology in dementia care at home: a mixed methods study
    Vimal Sriram
    Crispin Jenkinson
    Michele Peters
    [J]. BMC Geriatrics, 22