Online Focus Group Discussions to Engage Stigmatized Populations in Qualitative Health Research: Lessons Learned

被引:0
|
作者
Marley, Gifty [1 ]
Tan, Rayner Kay Jin [1 ]
Wang, Tong [1 ]
Li, Chunyan [2 ]
Byrne, Margaret E. [2 ]
Wu, Dan [3 ]
Wang, Cheng [4 ]
Tang, Weiming [5 ]
Ramaswamy, Rohit [6 ]
Luo, Danyang [1 ]
Sylvia, Sean S. [5 ]
Tucker, Joseph D. [3 ,5 ,7 ]
机构
[1] Univ North Carolina Project China, Guangzhou, Peoples R China
[2] Univ N Carolina, Inst Global Hlth & Infect Dis, Chapel Hill, NC USA
[3] London Sch Hyg & Trop Med, Clin Res Dept, London, England
[4] Southern Med Univ, Dermatol Hosp, Guangzhou, Peoples R China
[5] Univ North Carolina Chapel Hill, Dept Med, Chapel Hill, NC USA
[6] Cincinnati Childrens Hosp Med Ctr, Cincinnati, OH USA
[7] Univ N Carolina, Bioinformat Bldg,130 Mason Farm Rd,2nd floor, Chapel Hill, NC 27599 USA
关键词
men who have sex with men; WeChat; digital FGDs; qualitative research; participatory research; COMMUNITY ENGAGEMENT; MEN; SEX; CHINA; CHLAMYDIA; GONORRHEA; BARRIERS; PARTICIPATION;
D O I
10.1177/16094069231204767
中图分类号
C [社会科学总论];
学科分类号
03 ; 0303 ;
摘要
Community participation in research involving stigmatized populations has been sub-optimal, and digital tools could potentially increase participation in qualitative research. This study aims to describe the implementation of an online chat-based FGD (Focus Group Discussion) with men who have sex with men (MSM) in China as part of formative research for the PIONEER project, determine the advantages and limitations associated with the approach, and assess the feasibility of deepening community participation in STI research. Participants were involved in four days of asynchronous FGDs on sexually transmitted diseases and answered questions about the online FGD method. Online FGDs allowed us to deepen participant engagement through bidirectional communication channels. Data from online FGDs directly informed recruitment strategies and community participation for a clinical trial. Overall, 63% (29/46) of men who had never participated in offline LGBTQ + activities joined online FGDs. Many participants (89%, 41/46) noted that online FGDs were more convenient, less socially awkward, and more anonymous than in-person qualitative research. We highlighted potential risks as well as mitigation strategies when using online FGDs. Online FGDs were feasible among this group of sexual minorities and may be particularly useful in many cities where stigma limits in-person research participation.
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页数:12
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