The French Experience with a Population-Based Esophageal Atresia Registry (RENATO)

被引：4
|
作者：
Sfeir, Rony [1 ,4 ]
Aumar, Madeleine [1 ]
Sharma, Dyuti [1 ]
Labreuche, Julien [2 ]
Dauchet, Luc [3 ]
Gottrand, Frederic [1 ]
机构：
[1] Lille Univ, Jeanne Flandre Childrens Hosp, Reference Ctr Congenital & Malformat Esophageal Di, Dept Pediat,Div Gastroenterol Hepatol & Nutr,Fac M, Lille, France
[2] Data Management Maison Reg Rech Clin Univ Hosp Lil, SEED, Stat, Evaluat,Econ,France Hlth Stat, Lille, France
[3] Univ Hosp Lille, Dept Epidemiol & Publ Hlth, France Publ Hlth, Lille, France
[4] Lille Univ, Jeanne Flandre Childrens Hosp, Reference Ctr Congenital & Malformat Esophageal Di, Dept Pediat,Div Gastroenterol Hepatol & Nutr,Fac M, 1 av Eugene Avinee 59037, F-59000 Lille, France
来源：
EUROPEAN JOURNAL OF PEDIATRIC SURGERY | 2024年 / 34卷 / 02期
关键词：
population-based register; esophageal atresia; rare disease;
D O I：
10.1055/a-2206-6837
中图分类号：
R72 [儿科学];
学科分类号：
100202 ;
摘要：
This paper presented a national register for esophageal atresia (EA) started in January 2008. We report our experience about the conception of this database and its coordination. Data management and data quality are also detailed. In 2023, more than 2,500 patients with EA are included. Prevalence of EA in France was calculated at 1.8/10,000 live birth. Main clinical results are listed with scientific publications issued directly from the register.
引用
收藏
页码：137 / 142
页数：6
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