QUALITY OF LIFE OF MOROCCAN CHILDREN WITH RARE DISEASES: EVIDENCE FROM REAL-WORLD DATA

被引：0
|
作者：
El Hani, M. [1 ]
Ratbi, I [2 ]
Jdioui, W. [2 ]
Zerkaoui, M. [2 ]
Rifai, L. [2 ]
Cherrah, Y. [1 ]
Thimou Izgua, A. [3 ]
Serragui, S. [1 ]
机构：
[1] Univ Mohammed V Rabat, Fac Med & Pharm, Lab Pharmacol & Toxicol, Pharmacoepidemiol & Pharmacoecon Res Team, Rabat, Morocco
[2] Univ Mohammed V Rabat, Ibn Sina Univ Hosp, Childrens Hosp, Unity Med Genet, Rabat, Morocco
[3] Ibn Sina Univ Hosp, Childrens Hosp, Ctr Consultat & External Explorat, Rabat, Morocco
来源：
VALUE IN HEALTH | 2023年 / 26卷 / 12期
关键词：
D O I：
暂无
中图分类号：
F [经济];
学科分类号：
02 ;
摘要：
PCR249
引用
收藏
页码：S497 / S497
页数：1
相关论文
共 50 条
  • [1] Real-world study: from real-world data to real-world evidence
    Wen, Yi
    TRANSLATIONAL BREAST CANCER RESEARCH, 2020, 1
  • [2] Assessing Real-World Data Quality: The Application of Patient Registry Quality Criteria to Real-World Data and Real-World Evidence
    Richard E. Gliklich
    Michelle B. Leavy
    Therapeutic Innovation & Regulatory Science, 2020, 54 : 303 - 307
  • [3] Assessing Real-World Data Quality: The Application of Patient Registry Quality Criteria to Real-World Data and Real-World Evidence
    Gliklich, Richard E.
    Leavy, Michelle B.
    THERAPEUTIC INNOVATION & REGULATORY SCIENCE, 2020, 54 (02) : 303 - 307
  • [4] Local Data Quality Assessments on EHR-Based Real-World Data for Rare Diseases
    Tahar, Kais
    Verbuecheln, Raphael
    Martin, Tamara
    Graessner, Holm
    Krefting, Dagmar
    CARING IS SHARING-EXPLOITING THE VALUE IN DATA FOR HEALTH AND INNOVATION-PROCEEDINGS OF MIE 2023, 2023, 302 : 292 - 296
  • [5] AN OVERVIEW OF REAL-WORLD DATA SOURCES FOR REAL-WORLD STUDIES IN ONCOLOGY AND RARE DISEASES IN CHINA
    Jia, Y.
    Zhan, S.
    Guo, J. J.
    Cao, X.
    Zhang, Y. J.
    VALUE IN HEALTH, 2023, 26 (06) : S392 - S392
  • [6] Real-world evidence for coverage determination of treatments for rare diseases
    Victoria W. Dayer
    Michael F. Drummond
    Omar Dabbous
    Mondher Toumi
    Peter Neumann
    Sean Tunis
    Nelson Teich
    Shadi Saleh
    Ulf Persson
    Johann-Matthias Graf von der Schulenburg
    Daniel C. Malone
    Tay Salimullah
    Sean D. Sullivan
    Orphanet Journal of Rare Diseases, 19
  • [7] Real-world evidence for coverage determination of treatments for rare diseases
    Dayer, Victoria W.
    Drummond, Michael F.
    Dabbous, Omar
    Toumi, Mondher
    Neumann, Peter
    Tunis, Sean
    Teich, Nelson
    Saleh, Shadi
    Persson, Ulf
    von der Schulenburg, Johann-Matthias Graf
    Malone, Daniel C.
    Salimullah, Tay
    Sullivan, Sean D.
    ORPHANET JOURNAL OF RARE DISEASES, 2024, 19 (01)
  • [8] Development of a robust real-world data platform for rare diseases
    Cotter, Kristina
    Simpson, Brenda
    Fernandez, Charlene
    Chung, Brett
    Vandriel, Leo
    PHARMACOEPIDEMIOLOGY AND DRUG SAFETY, 2020, 29 : 560 - 560
  • [9] Translating real-world evidence/real-world data
    Ravenstijn, Paulien
    CTS-CLINICAL AND TRANSLATIONAL SCIENCE, 2024, 17 (05):
  • [10] A Statistical Roadmap for Journey from Real-World Data to Real-World Evidence
    Yixin Fang
    Hongwei Wang
    Weili He
    Therapeutic Innovation & Regulatory Science, 2020, 54 : 749 - 757
12345