When Family Life Contributes to Cancer Caregiver Burden in Palliative Care

被引:6
|
作者
Benson, Jacquelyn J. [1 ,6 ]
Washington, Karla T. [1 ]
Landon, Olivia J. [3 ]
Chakurian, Daphne E. [4 ]
Demiris, George [5 ]
Oliver, Debra Parker [2 ]
机构
[1] Washington Univ, Div Palliat Med, Sch Med, St Louis, MO USA
[2] Washington Univ, Sch Med, Div Palliat Med, Palliat Med & Support Care, St Louis, MO USA
[3] Univ Missouri, Dept Human Dev & Family Sci, Columbia, MO USA
[4] Univ Missouri, Sinclair Sch Nursing, Nursing & Healthcare Innovat, Columbia, MO USA
[5] Univ Penn, Perelman Sch Med, Dept Biobehav Hlth Sci, Dept Biostat Epidemiol & Informat,Sch Nursing, Philadelphia, PA USA
[6] Washington Univ, Dept Med, Div Palliat Med, 600 S Euclid Ave,MSC 8036-0029-06, St Louis, MO 63110 USA
关键词
cancer; caregiver; family life; palliative care; social support; caregiver burden; SOCIAL SUPPORT; CHILDRENS PROBLEMS; OLDER-ADULTS; INTERVENTIONS; DEPRESSION; IMPACT; WOMEN;
D O I
10.1177/10748407231167545
中图分类号
D669 [社会生活与社会问题]; C913 [社会生活与社会问题];
学科分类号
1204 ;
摘要
The difficulties of caring for a family member with advanced cancer are well documented. Support from a caregiver's social network-especially other family-is vital to reducing caregiver burden and psychological distress. However, the family environment is not always supportive as reports of family conflict and dissatisfaction with support are common. Despite knowing that family relationships are complex, little is known about the types of family stress that caregivers of advanced cancer patients face in their daily lives. To address this gap, researchers applied concepts from the double ABCX model to conduct a reflexive thematic analysis of interviews with 63 caregivers of cancer patients receiving outpatient palliative care. Four themes of family stress were identified: failed support, relational tensions, denial, and additional care work. Findings inform clinical assessment and caregiver intervention development by revealing the importance of measuring the mundane machinations of family life for caregivers of adult cancer patients.
引用
收藏
页码:275 / 287
页数:13
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