From participants to partners: reconceptualising authentic patient engagement roles in youth mental health research

被引:10
|
作者
Prebeg, Matthew [1 ,2 ]
Patton, Megan [1 ]
Desai, Riddhi [1 ]
Smith, Maureen [4 ]
Krause, Karolin [3 ]
Butcher, Nancy [5 ,6 ]
Monga, Suneeta [1 ,6 ,7 ]
机构
[1] Hosp Sick Children, Dept Psychiat, Toronto, ON, Canada
[2] Margaret & Wallace McCain Ctr Child, Ctr Addict & Mental Hlth, Youth & Family Mental Hlth, Toronto, ON, Canada
[3] Ctr Addict Mental Hlth, Cundill Ctr Child & Youth Depress, Toronto, ON, Canada
[4] Patient Partner, Ottawa, ON, Canada
[5] Hosp Sick Children Res Inst, Child Hlth Evaluat Sci, Toronto, ON, Canada
[6] Univ Toronto, Dept Psychiat, Toronto, ON, Canada
[7] Hosp Sick Children, Dept Psychiat, Toronto, ON M5G 1X8, Canada
来源
LANCET PSYCHIATRY | 2023年 / 10卷 / 02期
关键词
PUBLIC INVOLVEMENT; IMPLEMENTATION;
D O I
10.1016/S2215-0366(22)00377-7
中图分类号
R749 [精神病学];
学科分类号
100205 ;
摘要
The value of involving people with lived experience in the research process (ie, patient engagement) is increasingly being recognised within youth mental health research. The wide-reaching benefits of patient engagement have been documented in the literature, including the empowerment of patients, improvement of research outcomes, and increased relevance of research findings. Although various models exist to guide patient engagement, there are key concepts that deserve exploration to ensure the authentic implementation of these models and development of patient roles. Our Personal View aims to: identify and discuss barriers to patient engagement roles in the context of youth mental health research; consider how key concepts of relational empowerment, fluidity, and flexibility can address some of these barriers; and provide tangible recommendations for implementing authentic patient engagement throughout the research process.
引用
收藏
页码:139 / 145
页数:7
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