BARRIERS TO REDUCING TIME TO DIAGNOSIS AND TREATMENT IN RARE DISEASE

被引：0
|
作者：
Everett, W. [1 ]
Tatroe, S. [2 ]
Feng, L. [3 ]
Strumph, P. [4 ]
James, J. [3 ]
McNeil-Posey, K. [3 ]
Mungin, B. [3 ]
Rowe, C. [3 ]
Kielhorn, A. [5 ]
机构：
[1] Atlas Clarity, San Francisco, CA USA
[2] TwelveStone Hlth, Murfreesboro, TN USA
[3] Alexion, AstraZeneca Rare Dis, Boston, MA USA
[4] Seraxis, Germantown, MD USA
[5] Alexion, AstraZeneca Rare Dis, Norwell, MA USA
来源：
VALUE IN HEALTH | 2023年 / 26卷 / 06期
关键词：
D O I：
暂无
中图分类号：
F [经济];
学科分类号：
02 ;
摘要：
P52
引用
收藏
页码：S11 / S12
页数：2
相关论文
共 50 条
  • [1] DOES AVAILABILITY OF RARE DISEASE TREATMENT IMPROVE TIME TO DIAGNOSIS?
    Baisley, W.
    Lahue, B. J.
    [J]. VALUE IN HEALTH, 2024, 27 (06) : S316 - S316
  • [2] TIME DELAY BARRIERS IN DIAGNOSIS AND TREATMENT OF CANCER
    Majeed, I
    Rana, A.
    Rafique, M.
    Anwar, A. Waheed
    Mahmood, F.
    [J]. WORLD CANCER RESEARCH JOURNAL, 2018, 5 (03)
  • [3] Aceruloplasminemia Diagnosis and Treatment of a rare Disease
    Maser, J.
    Grau, A.
    Hornberger, E.
    [J]. NERVENARZT, 2019, 90 (02): : 185 - 187
  • [4] Psychosocial impact at the time of a rare disease diagnosis
    Benito-Lozano, Juan
    Arias-Merino, Greta
    Gomez-Martinez, Mario
    Arconada-Lopez, Beatriz
    Ruiz-Garcia, Begona
    Posada de la Paz, Manuel
    Alonso-Ferreira, Veronica
    [J]. PLOS ONE, 2023, 18 (07):
  • [5] Artificial intelligence in rare disease diagnosis and treatment
    Wojtara, Magda
    Rana, Emaan
    Rahman, Taibia
    Khanna, Palak
    Singh, Heshwin
    [J]. CTS-CLINICAL AND TRANSLATIONAL SCIENCE, 2023, 16 (11): : 2106 - 2111
  • [6] Sapientia: accelerating rare disease diagnosis and treatment
    Furness, Mike
    [J]. PERSONALIZED MEDICINE, 2016, 13 (05) : 415 - 418
  • [7] INTRATONSILLAR ABSCESS: DIAGNOSIS AND TREATMENT OF A RARE DISEASE
    Yang, M-L.
    Lee, J-C.
    Hsu, C-H.
    Kao, C-H.
    [J]. EUROPEAN JOURNAL OF INFLAMMATION, 2012, 10 (01) : 117 - 119
  • [8] Time to make rare disease diagnosis accessible to all
    Rehm, Heidi L.
    [J]. NATURE MEDICINE, 2022, 28 (02) : 241 - 242
  • [9] Time to make rare disease diagnosis accessible to all
    Heidi L. Rehm
    [J]. Nature Medicine, 2022, 28 : 241 - 242
  • [10] Personalizing rare disease research: how genomics is revolutionizing the diagnosis and treatment of rare disease
    Dolled-Filhart, Marisa P.
    Lordemann, Amanda
    Dahl, William
    Haraksingh, Rajini Rani
    Ou-Yang, Chih-Wen
    Lin, Jimmy Cheng-Ho
    [J]. PERSONALIZED MEDICINE, 2012, 9 (08) : 805 - 819
12345