Ethical Considerations in Clinical Trials for Rare Genetic Diseases: The Case of Huntington's Disease

被引:0
|
作者
Mendizabal, Adys [1 ]
Jones, Nora L. [2 ,3 ]
机构
[1] Univ Calif Los Angeles, Los Angeles, CA USA
[2] Temple Univ, Philadelphia, PA 19122 USA
[3] Temple Univ, Ctr Urban Bioeth, Philadelphia, PA 19122 USA
来源
AMERICAN JOURNAL OF BIOETHICS | 2023年 / 23卷 / 07期
关键词
D O I
10.1080/15265161.2023.2207511
中图分类号
B82 [伦理学(道德学)];
学科分类号
摘要
引用
收藏
页码:94 / 96
页数:3
相关论文
共 50 条
  • [1] Prenatal Genetic Testing for Huntington's Disease: Ethical Considerations
    Ashtiani, Setareh
    Doonanco, Jasmine
    Suchowersky, Oksana
    [J]. NEUROTHERAPEUTICS, 2018, 15 (01) : 234 - 235
  • [2] Clinical trials in rare but not life-threatening diseases: Gaucher disease as a model of emerging ethical considerations
    Zimran, A.
    Elstein, D.
    [J]. CLINICAL THERAPEUTICS, 2007, 29 : S119 - S119
  • [3] Predictive Testing and Clinical Trials in Huntington's Disease: An Ethical Analysis
    Sampaio, Cristina
    Levey, Jamie
    Klitzman, Robert
    [J]. MOVEMENT DISORDERS, 2018, 33 (02) : 243 - 247
  • [4] Ethical aspects of clinical trials in rare diseases
    Hasford, Joerg
    Koch, Armin
    [J]. BUNDESGESUNDHEITSBLATT-GESUNDHEITSFORSCHUNG-GESUNDHEITSSCHUTZ, 2017, 60 (05) : 556 - 562
  • [5] GENETIC THERAPIES FOR HUNTINGTON'S DISEASE FAIL IN CLINICAL TRIALS
    Kwon, Diana
    [J]. NATURE, 2021, 593 (7858) : 180 - 180
  • [6] Genetic Testing of HTT Modifiers for Huntington's Disease: Considerations for Clinical Guidelines
    Goldman, Jill S.
    Uhlmann, Wendy R.
    Naini, Ali B.
    Klitzman, Robert L.
    Marder, Karen S.
    [J]. MOVEMENT DISORDERS, 2023, 38 (12) : 2151 - 2154
  • [7] Update on clinical trials in Huntington's disease
    Kieburtz, K
    [J]. MOVEMENT DISORDERS, 2002, 17 : S14 - S15
  • [8] Translating Therapies for Huntington's Disease from Genetic Animal Models to Clinical Trials
    Hersch S.M.
    Ferrante R.J.
    [J]. NeuroRX, 2004, 1 (3): : 298 - 306
  • [9] Clinical trials of neural transplantation in Huntington's disease
    Rosser, Anne E.
    Bachoud-Levi, Anne-Catherine
    [J]. FUNCTIONAL NEURAL TRANSPLANTATION III PRIMARY AND STEM CELL THERAPIES FOR BRAIN REPAIR, PT I, 2012, 200 : 345 - 371
  • [10] Huntington's disease: the case for genetic modifiers
    Gusella, James F.
    MacDonald, Marcy E.
    [J]. GENOME MEDICINE, 2009, 1