Fetal Neurology Practice Survey: Current Practice and the Future Directions

被引:8
|
作者
Tarui, Tomo [1 ]
Venkatesan, Charu [2 ]
Gano, Dawn [3 ]
Lemmon, Monica E. [4 ]
Mulkey, Sarah B. [5 ,6 ,7 ]
Pardo, Andrea C. [8 ]
Emrick, Lisa [9 ]
Scher, Mark [10 ]
Agarwal, Sonika [11 ,12 ,13 ]
机构
[1] Brown Univ, Hasbro Childrens Hosp, Warren Alpert Med Sch, Div Pediat Neurol, Providence, RI USA
[2] Univ Cincinnati, Cincinnati Childrens Hosp Med Ctr, Dept Pediat, Div Neurol,Coll Med, Cincinnati, OH USA
[3] Univ Calif San Francisco, Dept Neurol & Pediat, San Francisco, CA USA
[4] Duke Univ, Sch Med, Dept Pediat & Populat Hlth Sci, Durham, NC USA
[5] Childrens Natl Hosp, Prenatal Pediat Inst, Washington, DC USA
[6] George Washington Univ, Sch Med & Hlth Sci, Dept Neurol, Washington, DC USA
[7] George Washington Univ, Sch Med & Hlth Sci, Dept Pediat, Washington, DC USA
[8] Northwestern Univ, Ann & Robert H Lurie Childrens Hosp Chicago, Dept Pediat, Div Neurol,Feinberg Sch Med, Chicago, IL USA
[9] Baylor Coll Med, Texas Childrens Hosp, Dept Pediat Neurol & Dev Neurosci, Houston, TX USA
[10] Case Western Reserve Univ, Sch Med, Pediat & Neurol, Cleveland, OH USA
[11] Childrens Hosp Philadelphia, Div Neurol & Pediat, Philadelphia, PA USA
[12] Univ Penn, Div Neurol, Perelman Sch Med, Philadelphia, PA USA
[13] Childrens Hosp Philadelphia, Div Neurol & Pediat, 3401 Civ Ctr Blvd, Philadelphia, PA 19104 USA
关键词
Fetal; Neurology; Practice; Counseling; Prognostic; Fetal MRI; Outcomes; Brain;
D O I
10.1016/j.pediatrneurol.2023.04.016
中图分类号
R74 [神经病学与精神病学];
学科分类号
摘要
Background: Fetal neurology is a rapidly evolving field. Consultations aim to diagnose, prognosticate, and coordinate prenatal and perinatal management along with other specialists and counsel expectant parents. Practice parameters and guidelines are limited.Methods: A 48-question online survey was administered to child neurologists. Questions targeted current care practices and perceived priorities for the field.Results: Representatives from 43 institutions in the United States responded; 83% had prenatal diagnosis centers, and the majority performed on-site neuroimaging. The earliest gestational age for fetal magnetic resonance imaging was variable. Annual consultations ranged from <20 to >100 patients. Fewer than half (n = 17.40%) were subspecialty trained. Most respondents (n = 39.91%) were interested in participating in a collaborative registry and educational initiatives.Conclusions: The survey highlights heterogeneity in clinical practice. Large multisite and multidisciplinary collaborations are essential to gather data that inform outcomes for fetuses evaluated across institutions through registries as well as creation of guidelines and educational material.& COPY; 2023 Elsevier Inc. All rights reserved.
引用
收藏
页码:74 / 79
页数:6
相关论文
共 50 条
  • [1] Interdisciplinary fetal neurology care: Current practice, challenges, and future directions
    Venkatesan, Charu
    Cortezzo, DonnaMaria
    Habli, Mounira
    Agarwal, Sonika
    SEMINARS IN FETAL & NEONATAL MEDICINE, 2024, 29 (01):
  • [2] Interventional Pulmonology In 2015: A Survey Of Current Practice And Future Directions Of This Emerging Field
    Butt, A.
    Gauhar, U.
    AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE, 2015, 191
  • [3] Capsule endoscopy:Current practice and future directions
    Melissa F Hale
    Reena Sidhu
    Mark E McAlindon
    World Journal of Gastroenterology, 2014, (24) : 7752 - 7759
  • [4] Scleral Lenses: Current Practice and Future Directions
    Jacobs, Deborah S.
    EYE & CONTACT LENS-SCIENCE AND CLINICAL PRACTICE, 2023, 49 (02): : 45 - 45
  • [5] HIV Testing: Current Practice and Future Directions
    Peter Cherutich
    Rebecca Bunnell
    Jonathan Mermin
    Current HIV/AIDS Reports, 2013, 10 : 134 - 141
  • [6] Visualization in transportation - Current practice and future directions
    Hughes, RG
    DRIVER AND VEHICLE SIMULATION, HUMAN PERFORMANCE, AND INFORMATION SYSTEMS FOR HIGHWAYS; RAILROAD SAFETY; AND VISUALIZATION IN TRANSPORTATION, 2004, (1899): : 167 - 174
  • [7] Carotid Revascularization: Current Practice and Future Directions
    Bagley, Jacob H.
    Priest, Ryan
    SEMINARS IN INTERVENTIONAL RADIOLOGY, 2020, 37 (02) : 132 - 139
  • [8] HIV Testing: Current Practice and Future Directions
    Cherutich, Peter
    Bunnell, Rebecca
    Mermin, Jonathan
    CURRENT HIV/AIDS REPORTS, 2013, 10 (02) : 134 - 141
  • [9] Musculoskeletal Imaging: Current Practice and Future Directions
    Farrell, Terence Patrick
    Adams, Niamh Catherine
    Walsh, John P.
    Hynes, John
    Eustace, Sarah Kate
    Kavanagh, Eoin
    SEMINARS IN MUSCULOSKELETAL RADIOLOGY, 2018, 22 (05) : 564 - 581
  • [10] Fabry Cardiomyopathy: Current Practice and Future Directions
    Yim, Jeffrey
    Yau, Olivia
    Yeung, Darwin F.
    Tsang, Teresa S. M.
    CELLS, 2021, 10 (06)