Practical recommendations for the collection of the patient-reported outcomes included in the Health Outcomes Observatory (H2O) core data set for patients with inflammatory bowel disease

被引:0
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作者
Fierens, L. [1 ]
Casellas, F. [2 ]
Borruel, N. [2 ]
van der Woude, C. J. [3 ]
Huberts, A. S. [4 ]
Siegmund, B. [5 ]
Sonnenberg, E. [5 ]
Novacek, G. [6 ]
Gerold, N. [6 ]
Stamm, T. [7 ]
Hedin, C. R. [8 ,9 ]
Julsgaard, M. [10 ]
Fiorino, G. [11 ,12 ]
Radice, S. [13 ]
Zini, M. L. L. [14 ]
Gross, E. [15 ]
Sander, C. [16 ]
Arijs, I. [17 ]
Vakouftsi, V. R. [18 ]
Carney, N. [19 ]
Charlafti, I. [20 ]
Ferrante, M. [1 ,21 ]
机构
[1] Katholieke Univ Leuven, Dept Chron Dis & Metab, Leuven, Belgium
[2] Hosp Univ Vall dHebron, Crohn Colitis Unit, Barcelona, Spain
[3] Erasmus Med Centrum, Dept Gastroenterol, Rotterdam, Netherlands
[4] Erasmus Med Centrum, Qual & Patientcare, Rotterdam, Netherlands
[5] Charite Univ Med Berlin, Med Klin Gastroenterol Infekt Rheumatol, Berlin, Germany
[6] Med Univ Vienna, Dept Internal Med, Vienna, Austria
[7] Med Univ Vienna, Inst Outcomes Res, Ctr Med Stat Informat & Intelligent Syst, Vienna, Austria
[8] Karolinska Inst, Dept Med Solna, Stockholm, Sweden
[9] Karolinska Univ Hosp, Dept Gastroenterol Dermatovenereol & Rheumatol, Gastroenterol unit, Stockholm, Sweden
[10] Aarhus Univ Hosp, Dept Gastroenterol & Hepatol, Aarhus, Denmark
[11] Univ Vita Salute San Raffaele, Dept Gastroenterol, Milan, Italy
[12] AO San Camillo Forlanini, IBD Unit, Rome, Italy
[13] San Raffaele Hosp Milan, Dept Gastroenterol, Milan, Italy
[14] Univ Vita Salute San Raffaele, Sch Med, Milan, Italy
[15] Osterreich Morbus Crohn Colitis Ulcerosa Vereini, Vienna, Austria
[16] Deutsch Morbus CrohnColitis Ulcerosa Vereinigung, Referat Wissensch, Vienna, Austria
[17] Belgian IBD Res & Dev BIRD, Zaventem, Belgium
[18] Hlth Outcomes Observ, Patient Advisory Board Inflammatory Bowel Dis, Vienna, Austria
[19] F Hoffmann La Roche Ltd, Personalised Healthcare & Patient Access, Basel, Switzerland
[20] F Hoffmann La Roche Ltd, Global Med Affairs, Basel, Switzerland
[21] Univ Hosp Leuven, Dept Gastroenterol & Hepatol, Leuven, Belgium
来源
JOURNAL OF CROHNS & COLITIS | 2023年 / 17卷
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中图分类号
R57 [消化系及腹部疾病];
学科分类号
摘要
P347
引用
收藏
页码:484 / 485
页数:2
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