Professional perspectives on serodiscordant family service provision in the context of blood-borne viruses

被引:1
|
作者
Drysdale, Kerryn [1 ]
Persson, Asha [1 ]
Smith, Anthony K. J. [1 ]
Wallace, Jack [2 ]
Valentine, Kylie [3 ]
Gray, Rebecca M. [1 ]
Bryant, Joanne [1 ]
Hamilton, Myra [4 ]
Newman, Christy E. [1 ]
机构
[1] UNSW Sydney, Ctr Social Res Hlth, Room 218,John Goodsell Bldg, Sydney, NSW 2052, Australia
[2] Burnet Inst, Melbourne, Vic, Australia
[3] UNSW Sydney, Social Policy Res Ctr, Sydney, NSW, Australia
[4] Univ Sydney, Ctr Excellence Populat Ageing Res Work & Org Stud, Sydney, NSW, Australia
来源
HEALTH SOCIOLOGY REVIEW | 2023年 / 32卷 / 02期
基金
澳大利亚研究理事会;
关键词
HIV; hepatitis B; hepatitis C; family; care and support; service provision; serodiscordance; HIV; HEALTH; INTERVENTIONS; CAREGIVERS; HIV/AIDS; MEMBERS; NEEDS; AIDS;
D O I
10.1080/14461242.2022.2110922
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
In recognition of the broader relational aspects of viral infections, family support is considered important when someone is diagnosed with a blood-borne virus (BBV), such as HIV, hepatitis C (HCV) and hepatitis B (HBV). However, families' own support needs are often not a priority in service provision within the BBV sector. In this article, we draw on qualitative interviews with 20 key informants working in various professional capacities in health, social policy, care and advocacy sectors in Australia, and explore their experiences and perspectives on family inclusivity in their services. Overall, key informants acknowledged the diversity of what constitutes family, and consistently viewed family engagement as beneficial to both diagnosed individuals and the wider familial networks affected by a diagnosis. However, prioritising individual care in support services presented barriers to engaging families, which are further complicated by the role of stigma in shaping the social realities of living with a BBV. Increasing understanding in service provision settings that serodiscordance can be a family experience has the potential to widen this analytic lens to consider the support needs of families in their own right.
引用
收藏
页码:145 / 160
页数:16
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