Cancer literacy - Informing patients and implementing shared decision making

被引:11
|
作者
Buyens, Guy [1 ]
van Balken, Michael [2 ,3 ]
Oliver, Kathy [4 ]
Price, Richard [5 ]
Venegoni, Enea [5 ]
Lawler, Mark [6 ]
Battisti, Nicolo Matteo Luca [7 ]
Van Poppel, Hendrik [8 ]
机构
[1] Anticanc Fund, Meise, Belgium
[2] European Assoc Urol Patient Off EAU PO, Arnhem, Netherlands
[3] Rijnstate Hosp, Arnhem, Netherlands
[4] Int Brain Tumour Alliance IBTA, London, England
[5] European Canc Org, Brussels, Belgium
[6] Queens Univ Belfast, Patrick G Johnston Ctr Canc Res, Belfast, North Ireland
[7] Royal Marsden NHS Fdn Trust, Sutton, England
[8] Catholic Univ, Dept Urol, Leuven, Belgium
来源
JOURNAL OF CANCER POLICY | 2023年 / 35卷
关键词
Health literacy; Cancer; Health information; Health behaviour; Shared decision making; Cancer patient; COMMUNICATION; CARE;
D O I
10.1016/j.jcpo.2022.100375
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
In order to tailor treatment to their needs, cancer patients are encouraged to be more active and engaged in their care decisions and to be autonomous yet collaborative with their healthcare professionals when it comes to aspects of their treatment in order to get better results. However, this can only happen after providing them with accurate information about cancer and the different treatment alternatives and their potential side effects. However, sharing robust data-based information is often hindered by exposure to misleading information through different media and online platform, where patients might come across unscientifically founded health practices. Increasing health literacy and cancer-specific literacy is essential to fight this negative trend. The idea is that more knowledgeable patients will be able to debunk more easily misinformation they encounter. This is also related to inequalities among cancer patients. Not only levels of cancer literacy within Europe are uneven across and within countries, but there are social groups that, due to specific social determinants, are systemat-ically less informed and skilled regarding cancer care. In this paper an overview of gaps in addressing literacy issues, and the importance of health literacy to empower patients in their journey through treatment is delin-eated, concluding with some recommendations to improve cancer literacy in Europe.
引用
收藏
页数:5
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