Care of patients with cardiac amyloidosis: Consensus paper of the German Cardiac Society (DGK), Working Group 40 Oncological Cardiology and the German Society for Hematology and Medical Oncology (DGHO), the German Society for Neurology (DGN) and the German Society for Nephrology (DGfN)

被引：0

作者：

Pfister, Roman ^{[1
,2
]}

Hagenacker, Tim ^{[3
,4
]}

Heemann, Uwe ^{[5
]}

Hegenbart, Ute ^{[6
]}

Heidecker, Bettina ^{[7
]}

Kruck, Sebastian ^{[8
]}

Knebel, Fabian ^{[9
,10
,11
]}

Lehmann, Lorenz ^{[12
,13
,14
]}

Morbach, Caroline ^{[15
,16
]}

Rischpler, Christoph ^{[17
]}

Schulze, P. Christian ^{[18
]}

Yilmaz, Ali ^{[19
]}

Perings, Christian ^{[20
,21
]}

机构：

[1] Univ Cologne, Med Fak, Klin Innere Med 3, Herzzentrum, Kerpener Str 62, D-50937 Cologne, Germany

[2] Univ Cologne, Uniklin Koln, Kerpener Str 62, D-50937 Cologne, Germany

[3] Univ Med Essen, Klin Neurol, Essen, Germany

[4] Univ Med Essen, Ctr Translat Neuro & Behav Sci, Essen, Germany

[5] Tech Univ Munich, Abt Nephrol, Klinikum Rechts Isar, Munich, Germany

[6] Univ Klinikum, Amyloidose Zentrum, Med Klin 5, Heidelberg, Germany

[7] Univ Med Berlin, Deutsch Herzzentrum Charite, Berlin, Germany

[8] Cardio Ctr Ludwigsburg Bietigheim, Bietigheim Bissingen, Germany

[9] Sana Klinikum Berlin Lichtenberg, Berlin, Germany

[10] Deutsch Herzzentrum Charite Berlin DHZC, Berlin, Germany

[11] ACCB Amyloidosezentrum Charite Berlin, Berlin, Germany

[12] Univ Klinikum Heidelberg, Abt Kardiol, Innere Med 3, Angiol,Pneumol, Heidelberg, Germany

[13] Deutsch Zentrum Herz Kreislauf Forsch DZHK, Heidelberg, Germany

[14] Deutsch Krebsforschungszentrum DKFZ, Heidelberg, Germany

[15] Univ Klinikum Wurzburg, Deutsch Zentrum Herzinsuffizienz, Dept Klin Forsch & Epidemiol, Wurzburg, Germany

[16] Univ Klinikum Wurzburg, Med Klin 1, Wurzburg, Germany

[17] Klinikum Stuttgart, Klin Nukl Med, Stuttgart, Germany

[18] Univ Klinikum Jena, Klin Innere Med 1, Jena, Germany

[19] Univ Klinikum Munster, Sekt Herzbildgebung, Klin Kardiol I, Munster, Germany

[20] Klinikum Lunen, KLW Paulus GmbH, Klin Kardiol Elektrophysiologe Pneumol & Intens Me, Lunen, Germany

[21] Deutsch Gesell Kardiol, Kommiss Klin Kardiovaskulare Med, Dusseldorf, Germany

来源：

KARDIOLOGIE | 2023年

关键词：

MRI; Cardiomyopathy; Network; Primary care; DIAGNOSIS;

D O I：

10.1007/s12181-023-00653-w

中图分类号：

R5 [内科学];

学科分类号：

1002 ; 100201 ;

摘要：

Historically amyloidosis was regarded as an orphan disease and was often treated centralized in a few specialized centers. Resulting from advances in noninvasive cardiac diagnostics, increased disease awareness and first availability of causal treatment, amyloidosis was detected more frequently in recent years and the incidence of transthyretin cardiomyopathy increased. In the context of new, albeit cost-intensive drug treatment forms, the observed developments necessitate the expansion of amyloidosis care structures. In order to provide comprehensive care of amyloidosis patients with high quality and standardized procedures, both primary care and interdisciplinary centers need to be embraced in transsectoral networks. This consensus paper describes the requirements for the implementation of such network structures with the aim to provide high-quality and timely care of patients with amyloidosis.

引用

页码：36 / 43

页数：8

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